JDRF – Divabetic

03/25/202103/25/2021

Reflections of a Unicorn with Type 1 Diabetes by Beverly S. Adler, PhD, CDCES Clinical Psychologist and Certified Diabetes Care & Education Specialist, Part 2

The Beginning of My Journey with Diabetes

It was a Monday morning in March 1975 when my GP (then known as General Practitioner, now referred to as Primary Care Physician) had me take a 5-hour oral glucose tolerance test in his office. On Friday, March 14, 1975, I returned to his office for the results of the test. He diagnosed me with “juvenile diabetes” (now referred to as type 1 diabetes). He gave me my first injection of insulin. There were no practice shots for me to learn how to inject myself. There were no diabetes educators or support groups for me to ask for guidance. He recommended a physician who was a specialist in diabetes for me to see for my care. That specialist (a diabetologist) was a wonderful man who helped to empower me to manage my diabetes. His name was Dr. Henry Dolger, a “Founding Father” of JDF (now referred to as JDRF, formerly known as the Juvenile Diabetes Research Foundation). His office staff welcomed me at my first visit and after reviewing the results from my glucose tolerance test asked me how my stay in the hospital was? I was alarmed, because I was never admitted to any hospital. To this day I don’t know how high my blood sugar reading was, but it must have been significant.

“I was told at the time of my diagnosis that I would be blind after ten years of living with diabetes.”

Diabetes management in those days was one shot of insulin a day. There were no meters to measure blood sugar, only urine tests to measure sugar “spilled” into your urine. It was an imprecise tool as it measured the sugar which had collected in your bladder. As time went on, my regimen changed to two shots per day. I was told at the time of my diagnosis that I would be blind after ten years of living with diabetes. At 20 years old that was daunting news to hear. I decided to continue studying my college major of psychology, accepting that I could still practice psychology in the future even if I were blind as long as I was able to hear my patients. Thankfully, I was not blind after 10 years, or 20 years, or 30 years or 40+ years! In fact, I have never experienced any diabetic eye complications.

Read Part 1

Dr. Beverly S. Adler PhD, CDCES has published two books which include insightful lessons of empowerment written by successful men and women with diabetes. Available for purchase.

MY SWEET LIFE: Successful Women with Diabetes by Beverly S. Adler, PhD, CDCES and Friends is a collection of life stories – each chapter written by a highly respected successful woman with diabetes. This group of diverse women share their stories how they find balance between managing their careers and/or family AND managing their diabetes.

The book is compiled by Dr. Beverly S. Adler who is also one of those women. “Dr. Bev” as she is better known, is a clinical psychologist and Certified Diabetes Educator in private practice, specializing treating patients with diabetes and also has had type 1 diabetes for 37 years. All those years ago when she was diagnosed, there were no role models with diabetes for her. This book is geared for women with diabetes who need role models who can inspire them. The book is written for the newly diagnosed woman with diabetes who is overwhelmed with her diagnosis. Or, for the woman who has had diabetes for a while, but can also benefit from uplifting, inspirational stories to encourage and motivate self-care (especially if they already are trying to cope with some complications).

Dr. Bev is joined by 23 contributing authors who are all women of exceptional accomplishments! Each story is unique and heartwarming, as these very special women share their triumph over diabetes. The reader can learn how the women’s experiences with diabetes helped to shape them into who they are today. The theme running through the book is that “diabetes is a blessing in disguise.”

Dr. Beverly S. Adler PhD, CDCES on November’s Diabetes Late Nite podcast with musical inspiration from one our all-time favorite divas, Whitney Houston.

Enjoy an exclusive listen of “Whitney Houston – I Wish You Love: More From ‘The Bodyguard’” courtesy of SONY Music. This 25th anniversary of “The Bodyguard” soundtrack album features the hit song, “I’m Every Woman” echoing the recent statistics that 1 in 10 women are now living with diabetes.

11/10/2018

‘Facing The Challenges of Living with Diabetes Everyday’ by Jessica Clark

Facing the challenges of living with diabetes everyday can be tough! And we’re not afraid to talk about it. You shouldn’t feel afraid either to express that ‘the struggle is real’ to friends, family and co-workers.

Need some inspiration for living ‘out loud’ about your diabetes?

Our Divabetic friend, Jessica Clark will stop by the studio to share her experience of living with the up’s and down’s of type 1 diabetes on November’s Diabetes Late Nite. Join us here on Wednesday, November 14 from 6 – 7:30 PM. CLICK HERE

Recently Jessica shared a very personal post on FB describing one of her saddest and most sincere diabetes moments. Below is what Jessica wishes you knew about her, the diabetes edition:

Every minute of my life is a calculation. And if it wasn’t, or I did it wrong, it can mean long-term tragic consequences. Even death.

I don’t feel good. Ever.

If I tell you I don’t feel good, then I REALLY don’t feel good.

It never works the way I want it to.

I can do the same thing every day, every detail, and have it still come out differently or wrong.

No one understands it.

But everyone is an expert on it.

I get judged for it.

It ruined my self-esteem.

Nothing is easy or straightforward

It changed me as a person, and sometimes I hate that.

I wonder how things could have been different if I didn’t have it.

I wonder what I would physically look like if I didn’t have it

I’ve been made fun of by my family and those closest to me regarding it

No matter what, I am seen as a complainer, wet blanket, trying to get attention, etc.

I go to bed every night not really knowing if I will wake up

I’m treated medically by people who learned how to care for me in books that are decades old

It’s fucking expensive to keep me alive

I feel like a burden physically and financially on people

I spend more to stay alive than people realize, even with insurance.

Giant for-profit corporations dictate the care I can receive and my quality of life.

A cure wouldn’t be profitable

My life is “managed” or “controlled”

Once you aren’t little or cute, few people genuinely care or help.

I’ve lost feeling in all of my fingertips.

I am diagnosed as “significantly visually impaired” because of it. Poor vision and night vision in my left eye. No peripheral vision, depth perception, or night vision in my right eye.

It isn’t easy or simple

It isn’t just eating well or working out

People judge and criticize my food choices.

My skin doesn’t get thicker or tougher to harsh remarks

I have to be “rude” and turn down items I can’t or shouldn’t have. (But then if I do have them, get judged or questioned, see above)

I subsequently make people feel “shitty” once I tell them why I can’t have said item.

But mostly, it’s lonely.

It’s really really lonely.

Here are several more of Jessica’s FB posts illustrating how ‘the struggle is real’ for millions of people living with type 1 diabetes:

“Diabetes awareness month real life post! Today was so shitty. Cracked windshield, dead (expensive) battery, so many things. I’m exhausted! Buuuut it’s 11pm and my blood sugar is 48 and I’m TIREEEDDD. But I can’t go to bed, because I might die. Sooo I’m not hungry or thirsty, but I’m drinking a juice box, eating to save my life. And this isn’t a once in a life time dramatic post. This is weekly, monthly. This is my ugly tired 11pm post of diabetes. This is T1D life. Jdrf one walk shirt was not planned lol.” – Jessica, November 2, 2018, 10:07 PM

“Most days, you control the diabetes. Some days, it controls you. Today was that day for me. It’s scary, and painful, but it’s not often. Bad enough I had to leave work, BG high enough I *probably* should have seen an ER (I didn’t, can’t afford healthcare costs. That’s another story. Lol) Shout out to all of my diabetic friends out there living through this shit we have to deal with.” – Jessica, October 10, 2018 at 4:16 PM

“This is the diabetes you don’t see. Tired, ready for bed, low blood sugar. Every time you test it drops lower and lower, and you keep treating and treating. You can’t breath, you’re confused, and your tired! But you can’t sleep, because if you sleep before it’s safe, you might not wake up. This is real. This is my life, every minute, of everyday, to some degree. This is the me you don’t see.” – Jessica, September 30, 2018

“Waking up to messages, comments, shares, from around the world is amazing, and I thank all of you. The gratitude I have, to have this life, and all of you in it is amazing. It is no secret that I am a “loud and proud” diabetic. A sometimes (unapologetically) open book. I love being able to help share moments that are common threads in the Diabetic community, but that little or no one vocalizes. I love being able to express what others cannot, for various different reasons. I would like to continue to do more for the community, in any way I can. I plan to work on more blogs, podcasts, events, whatever. If you would like to join me, come on in!” – Jessica, November 7, 2018

“My reason for sharing these moments is not to put a rain cloud over Diabetes or Diabetics. It’s simply to show how STRONG and how Human we really are. Most diabetics face challenges no one will ever see or know. Giving a voice to some of the moments and emotions is so important. Letting others know your feelings, and offer their help is crucial in being able to LIVE this wonderful life.”– Jessica, November 10, 2018

We’re celebrating World Diabetes Day with musical inspiration from Aretha Franklin on Diabetes Late Nite scheduled for Wednesday, November 14, 2018, 6 PM, EST. Guests include Poet Lorraine Brooks, Dr. Wendy Satin Rapaport, Diabetes Strong’s owner Christel Oerum, Beautyphonics CEO and “Beneath The Makeup”Author Suzanne Perez, Jessica Clark, Coach the Cure Health Educator Trisha Artman, and the Charlie’s Angels of Outreach. Throughout the podcast we will be playing music from Aretha Franklin’s ‘Aretha Franklin Sings the Great Diva Classics’ courtesy of SONY Music. TUNE IN

Diabetes Late Nite is a fast-paced, full-filled hour of diabetes education and wellness advice that encourages listeners to “laugh a little, learn a lot.”

https://youtu.be/tcpky_48Z7g

05/25/2017

Diabetes & Divas: Dina Merrill

Actress Dina Merrill, who was also the heiress to two fortunes died at age 93 on Monday.

I consider Dina Merrill to be a ‘Divabetic’. She was both an icon of taste and sophistication as well as an amazing diabetes advocate.

Her life as t he daughter of the Wall Street broker E. F. Hutton and the cereal heiress Marjorie Merriweather Post inspired me to write last year’s Mister Divabetic Mystery podcast: “Suspect Boulevard”.

I literally started making notes for a new mystery idea on my iPhone during my visit to her mother’s fabulous Hillwood Estate, Museum and Gardens in Washington, DC. I spent the day in Washington after raising awareness for diabetes by hosting the Red Tomato Carpet at Central Farm Markets in Bethesda, MD.

A beautiful portrait of Dina Merrill as a child in her mother’s bedroom captured my imagination. At the time I had no idea of Dina’s personal connection to diabetes nor her work in diabetes advocacy. I learned that Dina Merrill created a yearly award for scientific excellence in her son David’s name for the Juvenile Diabetes Research Foundation in 1974. She also served as the International Ambassador for ORBIS International, the flying eye hospital, which teaches advanced eye care and eye surgical techniques all over the world.

The award was recently presented to the research team at ViaCyte, Inc., a San Diego, Calif.-based regenerative medicine company that is at the forefront of developing an encapsulated cell-replacement therapy that has the potential to provide long-term relief from daily insulin dosing. The islet implants would potentially release insulin on demand in response to the body’s rising blood-glucose levels.

Dina Merrill made her Broadway debut in John Van Druten’s The Mermaid Singing in 1945. She had a more substantial role in 1975’s revival of the drama Angel Street.

The New York Times referred to Dina Merrill as an elegant presence in most of her 30 or so mid-20th-century movies, Ms. Merrill played the betrayed wife who loses both her husband, Laurence Harvey, and her mink coat to Elizabeth Taylor in “Butterfield 8” (1960); the chic fashion consultant who loses Glenn Ford to Shirley Jones in “The Courtship of Eddie’s Father” (1963); and the steadfast socialite wife of an assistant district attorney played by Burt Lancaster in “The Young Savages” (1961). Her 100-plus TV appearances ranged from What’s My Line? to What Makes Sammy Run? to The Magnificent Ambersons.

We fondly will refer to this tireless and legendary philanthropist as a ‘Divabetic’.

LISTEN NOW: Mister Divabetic Mystery podcast: “Suspect Boulevard.” The happy healthcare host, Mr. Divabetic hopes to inspire you to become a Diabetes Detective will this third installment of Diabetes Mystery Theater podcastOur cast includes Poet Lorraine Brooks, Patricia Addie-Gentle RN, CDE, ‘We Are Diabetes’ organization founder, Asha Brown, Catherine Schuller AICI, CIP, Susan Weiner MS, RD, CDE, CDN, Chef Robert Lewis, USA Today Best-Selling Author Tonya Kappes and Mama Rose Marie.

Throughout the podcast we will spotlight the wonderful music by the National Philaharmonic Orchestra under the direction of Charles Gerhardt courtesy of SONY MUSIC.