Diabetes Advocate and ‘We Are Diabetes’ organization founder and executive director, Asha Brown plays the character, ‘Primrose Crump’ in this year’s diabetes mystery podcast, “Suspect Boulevard” scheduled for Tuesday, September 13, 2016, 6-7 PM, EST.
It was such an honor to work with Asha on last year’s diabetes mystery podcast, “Phantom of the Okra”that I begged her to return again this year! Her passion for diabetes advocacy inspires me to GLAM MORE, FEAR LESS!
Asha was diagnosed with type 1 diabetes when she was 5 years old. Throughout her childhood, diabetes was simply a way of life because her father had type 1 most of his life as well. She didn’t mind being a little different than her friends and never had a problem explaining type 1 diabetes to anyone who had questions. In fact, diabetes never created an obstacle in Asha’s life until she was old enough to understand that her weight and body size were not completely under her own control. As a dancer, actress and a fitness instructor by the time she was 17, Asha lived for movement and her body’s ability to feel good in its own skin. After reading many articles and books that gave a daunting account of weight gain associated with insulin resistance and diabetes, Asha felt the first stirring of resentment towards a disease she felt was dooming her to an inability to have the physical strength and shape that she knew she deserved and could achieve. And so she started to omit insulin occasionally when it was “necessary” to get things done.
The obsession with maintaining a healthy size and weight while coping with multiple autoimmune disorders (hypothyroidism, polycystic ovary syndrome, as well as type 1 diabetes) became a full-time job for Asha during high school and college. The lack of support for type 1 diabetics was also disheartening as most of the information discussed in the media dealt with type 2 diabetes. Asha began to omit insulin for the purpose of weight control. She also started to rely on the numbing effect of ommission to drown out the daily anxieties that people with chronic illness often battle against. She felt it was a cruel joke to have such a passion for dance and performing and to have to constantly “take it easy” due to her low blood sugars, or worry that she would have one when she was on stage. Skipping her insulin shots, or taking less than required to cover a meal, became second nature to her, and for years she struggled with the cycles of omitting insulin, binging, restricting and swearing never to do it again.
Asha wrestled, off and on, with symptoms of diabulimia beginning in her sophomore year of high school, but it began to truly take over her life in her freshman year of college. By then, it dramatically affected every single choice she made in her life, her relationships and her daily routines. The effort to keep her eating disorder a secret became all-encompassing. It wasn’t until she met the love of her life and was married that she began to consider the idea of seeking treatment for her eating disorder. For years, Asha continued to tell herself that she would stop her dangerous secretive behaviors once she was at her perfect weight. The problem with that, of course, is that there’s no such thing as a perfect weight or a perfect body — and, therefore, no end in sight. Asha soon realized she had no idea how to live without her eating disorder. And she knew she could never be the wife and life partner to her wonderful husband or truly follow her dreams of performing until she let go of her destructive behaviors.
Asha took her first step towards living fully in her life again when she had an initial assessment made at the Park Nicollet Melrose Center in 2009. She was strongly encouraged to check into the inpatient treatment program that very day due to the severity and danger of her out-of-control diabetes. And with that, she surrendered. She went through a year of treatment, starting with two weeks of inpatient care and then moving to weekly outpatient appointments, and finally monthly. Along with the wonderful support she received from the staff at the Melrose Center, she realized how supportive her family and friends could be once she finally shared her difficulties with them. Her life began to churn once again with passion, discovery and joy.
Asha’s life today is new and very different after finally coming to terms with her disorder. She is no longer imprisoned by the numbers on the scale or the fear of food. After receiving treatment, she returned to teaching yoga, a passion she had enjoyed years ago before her diabulimia took top priority. She performs often in theaters in the Minneapolis area, and delights in exploring and cooking new recipes and foods. She lives very happily with her beloved husband who has been her grounding source of support and continues to give her the courage to fight the odds associated with her type 1 diabetes, her recovery, and reminds her of so many reasons to never give up.
Asha works with families, patients, and health professionals across the USA. She uses her personal experiences with ED-DMT1 to offer hope and support to those still struggling. She also establishes relationships with eating disorder facilities and diabetes organizations across the county to help connect people to appropriate care. Asha has presented at NEDA, AADE, and JDRF, among others. She writes for Diabetes Health, Diabetes Daily, Glu, Insulin Nation, dlife, DiabetesMine, and other websites. She was a member of the ADA Woman and Diabetes Subcommittee and is a member of Diabetes Advocates and BEDA.
We Are Diabetes is an organization primarily devoted to promoting support and awareness for type 1 diabetics who suffer from eating disorders. We are dedicated to providing guidance, hope and resources to those who may be struggling, as well as to their families and loved ones.
We Are Diabetes also advocates for living well and living strong with type 1 diabetes. The daily challenges of living with this disease, as well as the emotional and financial toll it takes, can oftentimes result in a sense of defeat or isolation. We help those who feel alone in their chronic illness find hope and courage to live healthy, happy lives!
DON’T MISS: Suspect Boulevard on Tuesday, September 13, 2016, 6-7 PM, EST. Our third annual Diabetes Mystery Theater Podcast, ‘Suspect Boulevard’ revolves around dogs, dementia, diamonds and diabetes. This special mystery theater production is loosely based on Billy Wilder’s film, Sunset Boulevard. Guests include: Poet Lorraine Brooks, Patricia Addie-Gentle RN, CDE, ‘We Are Diabetes’ organization founder, Asha Brown, Catherine Schuller AICI, CIP, Susan Weiner MS, RD, CDE, CDN, ‘Good Like This’ Author Peter Arpesella and Mama Rose Marie.
Throughout the podcast we will spotlight the wonderful music by the National Philaharmonic Orchestra under the direction of Charles Gerhardt courtesy of SONY MUSIC.
The happy healthcare host, Mr. Divabetic hopes to inspire you to become a Diabetes Detective will this third installment of Diabetes Mystery Theater podcast.
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