Tonight I celebrate my twelfth consecutive year of hosting monthly Divabetic podcasts. I am grateful to our listeners, guests, podcast team, and Sony Music for helping me stay true to a commitment I made to myself in 2003. I decided to help others affected by, at risk of, and living with diabetes to ‘keep their house a home’ by offering tools, time, and the expertise of professional credentialed healthcare collaborators.
My goal was then and continues to be to help others “keep their house a home” by preventing a stroke, related to mismanagement of diabetes, from occurring. I do this in memory of my boss, Luther Vandross.
Our Anniversary podcast’s musical inspiration is Kenneth Edmonds, who is known professionally as Babyface. He has written over 250 top-10 R&B and pop hits, working with the likes of Beyoncé, Aretha Franklin, Celine Dion, Luther Vandross, and Whitney Houston.
“The blessing of being able to write music and let music speak for itself is you let the melodies and let the lyrics and the groove talk to people instead of me talking to people,” says Babyface.
What makes Babyface so great? His ability to craft a song that touches our emotions captivates our ears and aligns every word in perfect harmony. It’s a rare gift that not many people have in music.
“I would say that I’ve been lucky. Being blessed and not really ever giving up,” says Babyface.
Thank you for allowing us to be part of your diabetes wellness journey! We’re looking forward to sharing more insight and advice on diabetes self-care from experts and peers, along with more great music in the next year!
Seeing Lucinda Williams’ triumphant return to live performance after suffering a stroke was the one most magical and life-affirming surprises in my life.
I never expected, when I bought tickets to see Bonnie Raitt (Lucinda was the opening act for Bonnie’s show) at the Beacon Theater in New York for my friend’s birthday, that I would see a stroke survivor reclaim her life and play music again. I was blown away!
Lucinda Williams suffered a stroke in November 2020 due to a blood clot on the right side of her brain. Although she is not sure of the exact cause of her stroke, she assumes it was caused by stress.
“What happens is your brain gets all… the wires get all crossed and you have to retrain your brain basically, to tell your arm to do whatever it is you’re trying to do,” Williams told the Rolling Stone. “So that’s the biggest challenge.”
She didn’t suffer speech aphasia from the stroke but walks with a cane, is unable to play guitar, and continues to experience pain on her left side. During her performance, she told the crowd that she hopes to play the guitar for us the next time she returns to New York!
Lucinda’s courage, strength, and perseverance remind me of my good friend and colleague, Catherine Schuller.
Catherine suffered a stroke on the morning of Divabetic’s last ‘Makeover Your Diabetes’ outreach at the Riverside Church in New York. Three years earlier, I found my boss, Luther Vandross, after he suffered a stroke related to mismanaged type 2 diabetes. To say I was heartsick when Catherine’s husband called me with the news of Catherine’s stroke is an understatement. However, Catherine’s life force and subsequent recovery serve as a source of inspiration for the Divabetic community.
Since her stroke, Lucinda Williams has been writing music. “The main thing is I can still sing. I’m singing my ass off, so that hasn’t been affected,” Williams told the Rolling Stone. “Can’t keep me down for too long.”
I’m thrilled to announce a song I co-wrote, “Mama’s Kitchen Table” by Ivan Hampden Jr. featuring Paulette McWilliams, entered the UK Soul Chart Top 30 at #15.
Since its release on Mother’s Day, our song has defied all expectations. Paulette, Ivan, and I had no idea people would embrace this song with such enthusiasm. Honestly, our greatest hope was that maybe it would attain 1,000 plays on Spotify. So imagine our disbelief and joy when we found out it surpassed 10,000 plays on Spotify.
“Mama’s Kitchen Table” is about a woman’s desire to find a respectable man she can bring home to her mama’s kitchen table. The heart of the home. The place where her family gathers to mark milestones, celebrate accomplishments, and honor commitments —the one place in the world where she feels comfortable being her true, authentic self.
“Mama’s Kitchen” combines a hypnotizing voice with a retro instrumental bass to create an incredible musical recipe.
“Mama’s Kitchen Table” continues R & B legend Luther Vandross’s musical legacy by uniting his longtime backing vocalist, Paulette McWilliams, his songwriter, drummer, and studio engineer Ivan Hampden Jr. and his long-time assistant, Max Szadek. Luther’s longtime album cover designer, George Corsillo, also contributed the artwork for the single.
As the song continues to surprise us daily, I remember my boss, Luther Vandross. His sudden and devasting stroke due to mismanaged type 2 diabetes impacted how I chose to live my life. I learned an important life lesson from his health tragedy; I don’t take tomorrow for granted. Since 2003, I try to stop and enjoy the moment at the moment rather than hold off for tomorrow. The emotions I am experiencing now are difficult to put into words. I’m surprised and overjoyed by our success. Never in my wildest dreams could I have anticipated co-writing lyrics to a song that would be on the UK Soul Chart!
Patti LaBelle‘s outspoken attitude about living well with type 2 diabetes at a Luther Vandross Tribute concert changed my life 20 years ago. She said, “diabetes doesn’t control me, I control my diabetes!”. Those words inspired me to coin the phrase ‘Divabetic’ (Divabetic.Org).
My former boss, Luther Vandross, never spoke openly about his type 2 diabetes beyond a prescription refill. At that moment, watching her on stage, I wished that I had the chance to talk about diabetes self-care with Luther prior to his stroke. Like everyone else, I thought he had his type 2 diabetes in the bag and didn’t need any support, or encouragement. When I found him on the floor after experiencing a stroke (related to mismanagement of type 2 diabetes) in April 2002, prior to the release of Dance With My Father, I deeply regretted my ignorance. To this day, I still wonder “what if?”
Patti LaBelle’s candidness or ‘new attitude’ about her diabetes health is probably the singular reason why I started a nonprofit organization. As hard as it might seem to ask for help, it’s worth it when you know there’s someone looking out for you. You deserve an entourage – a group of loving collaborators supporting you to live your best life!
Looking for a fun way to socialize without putting your diabetes wellness at risk? Do you need a little help staying on track with your diabetes self-care?
Back by popular demand! The happy healthcare host, Mr. Divabetic, hosts this free, fun Virtual Baking Party with our special guest, Stacey Harris, aka The Diabetic Pastry Chef on Wednesday, June 29, 2022, 7 – 8:30 PM, EST on Zoom.
Questlove won the Oscar for Best Documentary Feature for Summer of Soul (…Or, When the Revolution Could Not Be Televised) on Sunday, but his weight loss journey is also an impressive accomplishment.
Questlove and I were motivated to change our lifestyles after seeing friends experience debilitating strokes.
Luther Vandross‘s stroke, at the age of 52 related to mismanaged type 2 diabetes, motivated me to stay active and eat and drink in moderation. For the past nineteen years, his stroke and untimely death inspired me to start Divabetic and encourage others to keep their house a home by learning to prevent diabetes health-related complications.
Questlove’s motivation came from seeing many of his friends die from strokes in their 40s.
‘I was starting to hear the word ‘stroke’ just a little too much,’ Questlove said, as per Black American Web.
‘Friends of mine have died of strokes at 40, and peers of mine have died of strokes in their 40s, and it was disturbing me.’
Stroke is the fifth leading cause of death in America. Stroke is a “brain attack” that occurs when blood that brings oxygen to your brain stops flowing and brain cells die.
High blood pressure and obesity are two of the biggest risk factors for stroke, and the number of African-Americans with these medical conditions is on the rise.
Questlove used to eat everything without consideration for his health and was not very active before his weight-loss journey. He admitted it was easy for him to fall into bad habits by drinking and partying all night on regular occasions. He gained weight as time passed, and at his heaviest, he reached 488 pounds of body weight.
Questlove’s own weight and the death of his friends were a warning to him. So he made up his mind to change his lifestyle. He began by completely changing his diet. Next, he started consuming a healthy and balanced diet, primarily vegan foods. He also avoided those items high in carbohydrate content, such as gluten, wheat, and most dairy products.
He focused more on eating green vegetables and fresh fruits.
‘That’s another thing I’ve learned relaxin’, sleep, yoga,’ Questlove says. ‘I didn’t know that that’s as crucial as going hard, as working’ hard, as exercising hard…And what my yoga instructor, what my trainer, what they’re trying to teach me is that, ‘No, it’s sleep.’
That’s important. That’s just as important as working’ out.’
And that has helped him both lose and maintain his weight effectively.
Summer of Soul, directed by Questlove, tells the unjustly forgotten story of the 1969 Harlem Cultural Festival, which included performances from Nina Simone, Stevie Wonder, Sly & the Family Stone, Mahalia Jackson and more iconic artists operating in the ’60s, making the case that had this not been a primarily Black festival, it would have been as well-remembered and celebrated as Woodstock, which took place in New York that same year.
“It’s not lost on me that the story of the Harlem Cultural Festival should have been something that my beautiful mother and my dad should have taken me to when I was five years old,” Questlove said, saluting his late father while his mother watched from the audience in tears. “This is such a stunning moment for me right now. But it’s not about me. It’s about marginalized people in Harlem that needed to heal from pain.”
I witnessed how SHAME and BLAME associated with SIZE can break a person’s spirit can cause harm. Divabetic is proud to support World Obesity Dayon March 4, 2022. The goal of World Obesity Day is to stimulate and support practical actions that will help people achieve and maintain a healthy weight and reverse the global obesity crisis
My former boss, Luther Vandross‘s weight struggles seemed to sour each and every career success.
In April 2003, I found my boss, Luther Vandross, on his apartment floor after he suffered a stroke. I knew Luther was living with type 2 diabetes but never discussed it past refilling his medications. Looking back, I think that was a mistake. I feel the frustration, anger surrounding his size lit the match that sparked the mismanagement of his type 2 diabetes which lead to his devastating stroke and early death at the age of 54.
Divabetic’s Luther Vandross Tribute podcast talks about Luther’s ongoing weight issues and his history of yo-yo dieting. By the time Luther Vandross headed to the studio for a photoshoot for his fifth album Give Me the Reason in 1986, he lost a considerable amount of weight. Unfortunately, he was unable to maintain his weight loss when he went on tour to support the album. Radio DJ’s often commented on whether or not ‘Big Luther’ sounded better than ‘Thin Luther’. His weight struggles were a topic of public opinion. Throughout the podcast, we will be featuring music from Luther Vandross’s Give Me The Reason album courtesy of SONY Music.
For the past 19 years, I have dedicated myself to being a diabetes advocate. I founded the diabetes nonprofit, Divabetic (the ‘V’ stands for Vandross) at Divabetic.Org. We aim to inspire others living with, at-risk, and affected by diabetes ‘keep their house a home’ by learning how to prevent a diabetes health-related complication such as stroke. Managing diabetes is not easy. It’s a daily grind that relies on a team effort. Luther had about fifty people on tour supporting him with his music. Still, he chose to go it alone when managing his diabetes. I will be forever haunted by the experience of finding such a strong, kind, powerful, immensely talented man taken down by the mismanagement of diabetes.
This picture was taken at the auction we held after Luther’s passing in 2005. Looking back, I was shellshocked from Luther’s unexpected stroke and passing. It was devastating. So many of his fans blamed me as well as everyone who worked for Luther for his death. They thought we should have been able to intervene and prevent his stroke from happening. At the time, I didn’t realize that the mismanagement of diabetes could strike down one of the most powerful men I knew. My lingering regret has fueled my passion for diabetes advocacy. Please ‘keep your house a home’ and take time to learn how to prevent a diabetes health-related complication such as stroke.
Please visit Divabetic.Org and/or like Divabetic on Facebook. Your support keeps Luther’s memory and music alive!
This wonderful advocate, Patty Nece, JD, talks about her experiences with being stereotyped and shamed because of her weight during an important medical appointment.
Yesterday I was interviewed about my experience finding my boss, Luther Vandross after he suffered a stroke in his apartment in 2003.
My memories of that day are still crystal clear. My experience fuels my passion for helping others at risk, affected by and living with diabetes, to ‘keep their house a home,’ specifically by learning how to prevent a diabetes health-related complication.
My learning curve about stroke prevention was dramatic, and I don’t wish that to be the case for anyone else.
Two minutes after Luther, who was lying on a gurney, was wheeled into emergency, the doctor came out to tell me that Luther’s stroke could be prevented. I was dumbfounded. Up until that moment, I didn’t know the link between stroke and mismanaged diabetes. I use ‘mismanaged diabetes’ because well-managed diabetes is the leading cause of nothing. In Luther’s case, he was not managing his type 2 diabetes when he suffered a stroke. Instead, numerous people and media like to solely blame his weight for the stroke. They never mention noncompliance as a risk factor too.
I assume Luther must have felt the sense of overwhelming failure after regaining 125 + pounds. Understandably, he might have avoided taking his diabetes medications, seeking out his healthcare providers, and asking for help from others. As a result, he was alone in his battle. I think that was a mistake.
Luther Vandross, at age 52, suffered a stroke on April 16, 2003. But, unfortunately, his healthy story is not unique. He suffered from diabetes and hypertension, and his weight seesawed between 180 and 320 pounds. Even the term ‘yo yo’ dieting seems a bit naive to me. Personally, I feel Luther suffered from disordered eating behavior. Most of us don’t take time to think about our eating habits like what, when, and why they eat.
Signs and symptoms of disordered eating may include, but are not limited to:
Frequent dieting, anxiety associated with specific foods, or meal skipping
Chronic weight fluctuations
Rigid rituals and routines surrounding food and exercise
Feelings of guilt and shame associated with eating
Preoccupation with food, weight, and body image that negatively impacts the quality of life
A feeling of loss of control around food, including compulsive eating habits
Using exercise, food restriction, fasting, or purging to “make up for bad foods” consumed
Disordered eating behaviors are treatable with the right resources and help. But many people who suffer from disordered eating patterns either minimize or do not fully realize the impact it has on their mental and physical health. Luther liked to joke about his eating behaviors and weight. Specifically, I feel Luther suffered from binge eating.
Binge eating disorder (BED) is characterized by recurrent episodes of eating large quantities of food (often very quickly and to the point of discomfort); a feeling of a loss of control during the binge; experiencing shame, distress or guilt afterward; and not regularly using unhealthy compensatory measures (e.g., purging) to counter the binge eating. It is the most common eating disorder in the United States.
Sadly, Luther and I never discussed his type 2 diabetes beyond the need to refill a prescription. I didn’t even know he had hypertension. So do I regret that I wasn’t more involved in his diabetes self-care? Absolutely! But it seems only Cher is capable of turning back time. So my time left on earth is dedicated to sharing my experience to inspire others.
We did discuss his weight. He asked me how I managed my weight. I told him that I exercised. When he said that he didn’t exercise, I suggested that he try step aerobics. Up until that point, Luther relied on liquid diets to maintain his weight loss. Ultimately, Luther liked step aerobics so much that we traveled on tour with a step aerobics instructor.
Unfortunately, his all-or-nothing approach to diet and exercise did not help. He could not practice moderation. I don’t think he is alone in that regard. My friend, High Voltage, abstains from added sugar because she believes her body reacts to added sugar like it’s a drug. She often compares the experience of sugar cravings to cocaine addiction. High Voltage can’t have one teaspoon of sugar and stop. Unfortunately, moderation is not the cure for everyone. Sadly, we choose to beat ourselves up and others for lacking the willpower to stop eating certain foods when the real culprit could be brain chemistry.
During the interview, I was asked if Luther experienced love. Unfortunately, I think he was lacking in self-love.
“If I’m emotionally distraught, then eating is my coping mechanism,” Luther Vandross told Britain’s Q magazine in 1991. “For what ails me, it seems to be the only thing that takes the edge off the pain.”
Strokes, the third-leading cause of death for all racial and ethnic groups, killed 18,884 African-Americans in 1999.
Also, in 1999, 11,927 African-Americans died from diabetes, the sixth-leading cause of death for African-Americans.
Divabetic’s Luther Vandross Tributepodcast guests include Lisa Fischer, Jason Miles, Jeff James, Patricia Addie-Gentle RN, CDE, and Chuck Flowers.
By the time Luther Vandross headed to the studio to record his fifth album Give Me the Reason in 1986, he’d become one of the most successful soul singers of the first half of the eighties. His four previous albums have been either certified platinum or double-platinum in America.
For Luther Vandross’ fifth album Give Me the Reason, the album comprised nine tracks including the hits: So Amazing, There’s Nothing Better Than Love, Stop To Love and Give Me The Reason.
Throughout the podcast, we will be featuring music from Luther Vandross’s Give Me The Reason album courtesy of SONY Music.
Angela Bofill suffered two strokes but neither stroke could take away her positive, humorous personality and her fighter spirit.
After she lost the ability to sing, she returned to the stage for “The Angela Bofill Experience” in which she skillfully narrated her life story, while her band and other singers.
With her strong, distinctive alto, Angela Bofill carved a niche as an outstanding interpreter of soul ballads and became a mainstay on the Quiet Storm radio format. Check out her Live From Manila album featuring all of her biggest hits.
Stroke is the fifth leading cause of death and a leading cause of adult disability in the US. As many as 5 to 14 percent of stroke survivors have a second stroke within one year.
Looking for a fun way to socialize without putting your diabetes wellness at risk? Do you need a little help staying on track with your diabetes self-care?
Join the happy healthcare host, Mr. Divabetic for this free, fun Virtual Baking Party with Stacey Harris aka The Diabetic Pastry Chef on Thursday, September 23, 7 – 8 PM, EST on Zoom.
During this virtual Baking Party on Zoom, The Diabetic Pastry Chef will prepare a Sugar-Free Dessert recipe and share expert baking tips for using sugar substitutes in your favorite recipes.
After being diagnosed with type 2 diabetes, Stacey Harris (The Diabetic Pastry Chef) taught herself how to make pound cake, pecan rolls, pies, muffins, cupcakes, and other baked goods with about half the carbs you’d get from a traditional bakery item.
Divabetic® (divabetic.org) is a national nonprofit diabetes outreach organization committed to changing attitudes in people at risk, affected by and living with diabetes. We strive to encourage prevention, early action, and above all, education. Check out our free monthly podcasts and our free Zoom outreach programs.
Divabetic® was inspired by the late R & B legend, Luther Vandross, and created and founded by his long-time assistant, Max Szadek. Divabetic®, a combination of the word ‘diabetic’ with the letter ‘V’ inserted for Vandross, evokes feelings of power and the positive attitude associated with the great DIVAS Luther loved like Patti LaBelle.
If music has the power to move you, then let the ballad, Love Won’t Let Me Wait, written by Vinnie Barrett and Bobby Eli, and sung by Major Harris, Nancy Wilson, and Luther Vandross, be a reminder to take immediate action when someone you love is experiencing a stroke.
When it comes to stroke, every second counts! Waiting or praying it away are not options if you, a spouse, friend, or family member have a stroke. And what you do in those critical moments can potentially help save someone’s life.
Nearly 2 million brain cells die each minute a stroke remains untreated.
“The most frustrating thing for me as a stroke specialist is that folks will stay home with their symptoms,” said Dr. Carlene Kingston, stroke medical director at Novant Health Presbyterian Medical Center in Charlotte, North Carolina. “They’ll notice that one part of their body isn’t working, and their first call is to their primary care doctor or their spouse. That is never the answer. The answer is to call 911.”
Rapid access to medical treatment often makes the difference between full recovery and permanent disability.
“Several hours passed between the time my boss, Luther Vandross, first experienced a stroke, and I found him,” says Max Szadek.” The time gap hindered his recovery.”
Most strokes are not associated with pain, which often leads people to believe they’re okay, and they wait for the symptoms they’re experiencing to pass. However, with each passing minute, brain cells are dying that will never be recovered.
The national standard for treating ischemic strokes is to administer a tissue plasminogen activator or tPA. This clot-busting medication can potentially reverse the symptoms of stroke within 60 minutes of a patent’s arrival at the ER.
The faster the medication is administered, the better the outcomes are for stroke survivors.
If you do nothing else, act quickly to call 911 and tell the 911 dispatcher, ‘I think I’m having a stroke or ‘I think my loved one is.'”
Use the letters in “F.A.S.T.” to spot stroke signs and know when to call 9-1-1.
F: Face Drooping: Does one side of the face droop, or is it numb? Ask the person to smile. Is the person’s smile uneven or lopsided?
A: Arm Weakness: Is one arm weak or numb? Ask the person to raise both arms. Does one arm drift downward?
S: Speech: Is speech slurred? Is the person unable to speak or hard to understand? Ask the person to repeat a simple sentence.
T: Time to Call 9-1-1: If the person shows any of these symptoms, even if the symptoms go away, call 9-1-1 and get them to the hospital immediately.
If you get your spouse, friend, and/or family member to the hospital when symptoms start, the likelihood of surviving and not having any disability much more significant.
Barbra Streisand singing ‘Being Alive’ from her The Broadway Album, you’ll hear it on next week’s Diabetes Late Nitepodcast, is inspiring this post. Seriously, the combination of Barbra’s voice, lyrics from a popular Broadway musical, and the sunshine streaming through my window at 7 AM are like a multi-vitamin for an older gay gent like me.
If there’s any truth to the saying or Madonna’s Vogue song lyric ‘beauty is where you find it then it’s clear I found it in Catherine Schuller. From the most moment we met, back in 2005, she has been a powerful, positive, and empowering force in my life. Always stylish, always upbeat, always sparkling! She has helped me to define and refine Divabetic’s GLAM MORE, FEAR LESS philosophy. Together found a way to stamp out the shame and blame associated with a diabetes diagnosis by making people feel better about themselves right now, not tomorrow. It’s funny how a bit of mascara, a bright-colored feather boa, and the hook to your favorite disco tune can push the clouds away.
I have plenty of reasons to love Catherine just for her work as Divabetic’s Image & Style Advisor on Divabetic’s national tour of Makeover Your Diabetes outreach programs. Her ability to comfort, care, and cheer on all types of divas (type 1, type 2, LADA, gestational, and prediabetes) was remarkable. But love beams are shooting straight out of my heart because of the passionate way Catherine lives after experiencing a stroke. I don’t think a day goes by that she doesn’t make the most of every moment.
During the pandemic, when I wasn’t sure if it was Monday or Thursday, Catherine managed to give Dr. Birx a run for her money! She took up my challenge to demonstrate many ways to tie a scarf on one of Divabetic’s past Zoom programs.
Next week Catherine joins me for the two-part stroke prevention webinar, Keep Your House A Home, for the Frazier Coalition for Stroke in Philadelphia. My good friend and health champion, Senior Health Educator for Center for Urban Health at Thomas Jefferson University Hospital, Neva White DNP, CRNP- BC, CDCES is organizing it.
Catherine plans to share her powerful testimony about advocating for her health after experiencing a stroke. After her husband told her to go upstairs and lie down, she told him in no uncertain terms to call an ambulance so she could get to a hospital. Her wise decision to seek help right away and not wait is why her recovery has been so excellent. Fortunately, Catherine’s quick thinking is precisely why she able to receive the stroke drug tPA. This potent clot-busting medication, tPA, may save critical brain tissue if a patient arrives at the emergency room within three hours of experiencing stroke symptoms. And there’s a new study that suggests that the traditional three-hour time window is too short. Combining data from multiple clinical trials, Maarten Lansberg, MD, PhD, assistant professor of neurology and neurological sciences at Stanford, and colleagues from Belgium and Germany have shown that treatment can benefit patients up to 4.5 hours experience their first symptom. Their findings were published online on May 21 in the journal Stroke.
The timing of treatment is essential because giving a blood thinner like tPA during a stroke can cause bleeding inside the brain. The longer a patient waits to get treatment, the more likely the risks of treatment will outweigh the benefits.
My life and the lives of many others were devasted by Luther Vandross’s stroke, related to his mismanagement of type 2 diabetes. I can’t turn back time and change his outcome, but hopefully, you can change yours. Let Catherine Schuller inspire you to GLAM MORE, FEAR LESS, and advocate for your health today, not tomorrow!
