Fear isn’t the best way to motivate ourselves, and while it might give you a little boost to take better care of your diabetes, it often doesn’t last.
The stress and anxiety that come along with fear can really weigh us down. Instead, a more effective way is to mix a little fear with positive incentives, creating a supportive environment that encourages actions in a happier, more uplifting way.
As I reflected on the experience of finding my boss, Luther Vandross, after he suffered a stroke due to mismanaged type 2 diabetes in the Luther: Never Too Much documentary, I became acutely aware of the trauma I endured. Those memories still feel fresh, even after two decades!
Rather than using Luther’s health journey to scare or pressure people at Divabetic programs into tighter diabetes management, I created an upbeat atmosphere using games, music, crafts and makeover experiences to empower people.
I aim to boost everyone’s confidence in their ability to manage their self-care and guide them towards optimal health. Inspiring someone by uplifting their self-belief is far more effective—encouraging them with a heartfelt ‘Yes, you can do it!’ is much better than saying ‘Be careful, watch out!’
It could be fact or fable, but I was told that director Dawn Porter’s team listened to my Luther Vandross Tribute podcasts while developing. the Luther: Never Too Much documentary.
I came across a Polaroid from my PEOPLE Magazine profile from two decades ago, and it brought back such wonderful memories! Back then, the talented writer Mark Dagostino highlighted my journey of finding Luther Vandross after he faced a tough battle with a stroke due to mismanaged type 2 diabetes.
This inspired me to create the national nonprofit Divabetic, aimed at helping Luther’s fans and their families keep their homes joyful and healthy by learning how to prevent diabetes-related complications.
I was so lucky to host free monthly Divabetic support meetings at the McBurney YMCA, and I loved volunteering backstage at the national diabetes TV show, dlife, with my wonderful parents. The exposure from PEOPLE, along with my amazing network of healthcare professionals, helped me land on Novo Nordisk’s shortlist for a trial program.
With a backpack filled with Divabetic and Dude-a-betic t-shirts and a stack of flyers for various diabetes programs, I nervously pitched both myself and Divabetic to the PR team, BioSector. They were a bit puzzled by my unconventional approach, but when they asked which program I wanted Novo Nordisk to produce, I glanced at my flyers and said, “Since our name is Divabetic, people will expect a touch of glamour. I really want to go with our Makeover program!”
You can catch all of Toni’s amazing shows on Mixcloud.
Here’s a fun little tidbit about Pink Champagne: my lyrics celebrate our dear friend, the legendary Luther Vandross.
Luther had a passion for Art Deco and Art Nouveau furniture and took great joy in decorating his stunning homes in Beverly Hills, Connecticut, and New York with these exquisite pieces.
Plus, did you know his gorgeous stage costumes designed by Tony Chase and Elizabeth Courtney were also inspired by these beautiful styles? I hosted a Luther Vandross: Music & Style event with my friends, Keith Anthony Fluitt, Christopher Faison and James Ervin this past April in New York City.
You can see Luther’s fantastic costumes, artifacts and memorabilia on display at the GRAMMY Museum in Los Angeles until June 2025. The exhibit offers an intimate glimpse into Luther Vandross’ creative process and showcases his ornate stage wardrobe, exclusive performance footage from his popular tours, and a never-before-heard recording of him in the studio.
I was lucky enough to accompany him on a few trips to auction houses where he searched for these treasures, and that’s where the mention of Christie’s Auction House in the lyrics comes from! Thanks for letting me share my memories of my friendship with Luther!
“Luther: Never Too Much,” the documentary film from award-winning director Dawn Porter, chronicles the story of a vocal virtuoso will be available on streaming apps in January 2025.
Using a wealth of rarely seen archives, Luther tells his own story with assistance from his closest friends and musical collaborators including Mariah Carey, Dionne Warwick, Valerie Simpson, Seveda Williams, Fonzi Thornton, Robin Clark, Ava Cherry, Kevin Owens, Lisa Fischer, Carlos Alomar, Max Szadek, and Roberta Flack.
The film relives the many stunning moments of Luther’s musical career, while exploring his personal life, health struggles, and a lifelong battle to earn the respect his music deserved.
Sadly Luther suffered a stroke related to mismanged type 2 diabetes in 2003. The phrase “Every minute counts” is a warning to heed if you suspect someone close to you is having a stroke.
F-A-S-T is an acronym created to teach people how to recognize and remember the most common indicators that someone might be having a stroke. Here is what each of the letters stands for:
T for TIME: Don’t wait or lay down to see if symptoms disappear. Call 911.
F for FACE: One side of a person’s mouth appears to be drooping or their smile looks lopsided. .
A for ARMS: People who are having a stroke usually have difficulty moving arms and legs.
S for SPEECH: Difficulty talking, slurring words, repeating the same words or phrases, or their conversation doesn’t make sense, it may be a stroke.
I’m excited to be Toni B’s Special Guest on her upcoming show this Wednesday, December 11, on UG-ONE! I can’t wait to share stories from my incredible experience working with Luther Vandross.
I started working with Luther in 1993 on the Never Let Me Go project in the wardrobe department and eventually became his assistant until he sadly passed away in 2005.
In the Luther: Never Too Much documentary, I discuss my traumatic moment of finding Luther after he had a devastating stroke due to complications from mismanaged type 2 diabetes. It was a wake-up call for me that inspired the creation of Divabetic, a national nonprofit aimed at diabetes outreach.
I truly believe in empowering Luther’s fans and their families to keep their homes healthy and happy by learning to prevent complications like strokes, kidney disease, blindness, and more.
At Diabetic (Divabetic.org), we take a unique approach to traditional diabetes education, offering fun, upbeat, engaging makeovers, music, and games. I’m thrilled that our resources—like podcasts, videos, and online support—are free!
I’ve also enjoyed collaborating with my talented musical family from Luther’s world. With Ivan Hampden Jr. and Paulette McWilliams, I’ve written songs like Mama’s Kitchen Table and Pink Champagne.
I’ve worked with incredible artists like Cindy Mizelle and Brenda White-King on That Man Of Mine and Pat Lacy with Lisa Fischer on I Wish At Christmas I Could Bring You Home.
A couple of my singles, Mama’s Kitchen Table and Standards by Crystal Penny, even charted on the UK Soul and BCFM Soul Charts! That Man of Mine was a big hit on the Billboard Dance Charts in the 90s and was especially popular in Provincetown.
I can’t wait to share more on the show! I hope you all tune in!
Luther Vandross’s Never Too Much documentary opens in theaters starting November 1st!
I’ve seen it thrice and walked away with a different insight each time. One of the things I enjoy most is seeing Luther’s discipline, drive, and determination to succeed. It’s easy to think Luther had no trouble getting signed to a record deal, but the opposite is true. He spent his own money, earned from singing jiggles, to finance his demo and was rejected by several labels.
I never met anyone with his convictions. He taught me to believe in myself and my ideas and to invest in them.
The documentary relives the many stunning moments of Luther’s musical career while exploring his personal life, health struggles related to mismanaged type 2 diabetes, and a lifelong battle to earn the respect his music deserved.
Using a wealth of rarely seen archives, Luther tells his story with assistance from his closest friends, ME (!), and musical collaborators, including Mariah Carey, Dionne Warwick, Valerie Simpson, and Roberta Flack.
It’s strange to see yourself on screen and share such a traumatic experience. I am grateful to everyone who has supported, participated, and partnered with me with my diabetes nonprofit organization, Divabetic.
After Luther’s stroke, I could have left his side and found work supporting another musical artist. Instead, I chose a different path. I educated myself about diabetes (I have a family history of type 1 and type 2 diabetes) and helped educate and empower others so that we could all keep our house a home.
I still believe that’s the best way to honor Luther’s legacy.
Watch the trailer for LUTHER: NEVER TOO MUCH, an intimate look into a musical icon’s stunning life and career. From filmmaker Dawn Porter (John Lewis: Good Trouble), it features interviews with many of Luther’s closest friends, collaborators, me(!), and fans, including Mariah Carey, Dionne Warick, Valerie Simpson, Roberta Flack, Jamie Foxx, and more.
Luther fans will hear how he got his start after crashing a recording session for David Bowie’s Young Americans and becoming one of the most sought-after backup singers for artists such as Chic, Michael Jackson, Barbra Streisand, and Aretha Franklin before his 1981 solo breakout R&B hit Never Too Much.
The Here and Now artist suffered a stroke related to mismanaged type 2 diabetes in 2003. This inconceivable occurrence was the founding inspiration for me to start Divabetic. As Luther’s assistant, I wanted to encourage a new attitude about diabetes. One of our guiding principles is for people living with diabetes to create an entourage of care featuring family, friends, and healthcare collaborators to help with their self-care management.
Sadly, Luther was never able to recover fully. I stayed with him, supervising his care and rehabilitation until he died in 2005. Diabetes may have silenced one of the world’s greatest voices, but his worldwide influence endures.
Get inspired to stay healthy and upbeat about your self-care through Divabetic’s tribute podcasts, videos, Zoom meetups, and more.
Luther: Never Too Much documentary opens in theaters in select cities beginning November 1. Nationwide preview screenings October 30. Presented by Giant Pictures and CNN Films.
Join me tonight for the free screening of the Luther: Never Too Much documentary, live Luther Tribute performances by Keith Anthony Fluitt, and a Q&A Panel with Fonzi Thornton and Dawn Porter in Marcus Garvey Park in Harlem.
Knowing and working for such an incredible artist and caring man was an honor. It’s a privilege to appear in the documentary to raise awareness of the tragic consequences of mismanaged type 2 diabetes. Seeing the trauma I experienced in my face on screen as I recalled the initial moments after Luther’s stroke made me realize how grateful I am to everyone who has supported, encouraged, and partnered with me on my various diabetes outreach efforts through my nonprofit organization, Divabetic. Org
Sadly, I wasn’t able to help Luther initially after he suffered a stroke. Heed my advice: if you are someone you love who has experienced a stroke, don’t wait to seek help or try to sleep. Every minute counts. The longer a stroke goes untreated, the greater the potential for brain damage and disability.
Act F.A.S.T. to help identify the early signs and symptoms of a stroke:
F: Is there drooping on one side of the face? Is the person unable to smile? Has their mouth or eye drooped?
A: Can the person raise both arms and keep them there? Is there weakness or numbness in an arm or leg?
S: Is the person’s speech slurred or garbled? Are they unable to speak at all? Do they need help understanding what you’re saying to them?
T: If you notice any of these signs, call emergency services immediately
If you’re a Luther fan, please, “Keeping Your House A Home” by learning how to prevent diabetes health-related complications such as stroke, kidney failure, lower limb amputation, and blindness has been my mission for the past 20 years, and it will continue to be.
If you see this documentary or love Luther’s music, you owe it to his legacy to educate and empower yourself about your health.
Join me for the upcoming ImageNation’s SOUL TRAIN Tribute to Luther Vandross on Thursday, September 5, 2024, at 6 PM, in Marcus Garvey Park in Harlem, NY.
It’s going to be a sensational night celebrating Luther’s legacy. The night starts with DJ Stormin Norman and a Soul Train Dance Line. Several local performers will perform, including Chandlar and Karen J, Chris Rob, Heshima, Michael Pollydore, and our friend Keith Anthony Fluitt. Keith performed a few of Luther’s iconic hits at Divabetic’s Luther Vandross Music & Style Celebration in April.
After the outdoor screening of the Luther: Never Too Much documentary, Director Dawn Porter and singer and songwriter Fonzi Thornton participate in a Q&A session. The celebration continues with an AfterParty featuring live bands and a DJ interweaving Luther Tributes in their sets at Shrine World Music Venue, 2271 Adam Clayton Powell Jr Blvd between 133rd & 134th Streets, New York, NY 10030.
Earlier this week, I spoke to one of the event organizers, Joy Enterprises’ Marko S. Nobles, owner of Rhythm and Soul Radio. Marko spent years learning, growing, and becoming an experienced PR, Marketing, Radio, Event Production, and Entertainment professional.
Marko’s Rhythm and Soul Radio played Ivan Hampden Jr. and Paulette McWilliams‘ song “Mama Kitchen Table” last summer. Paulette and I wrote the lyrics to this song, which topped the UK Soul Charts. Marko, a stroke survivor, said Joy Enterprises hosts a Soul Train Tribute every year to celebrate Don Cornelius‘s legacy of Don and the artists who appeared on Soul Train. Past honorees include superstars Stevie Wonder, Prince, Aretha Franklin, and James Brown.
“I grew up on Soul Train,” says Marko. “It was a Saturday morning staple in our households.” When I asked Marko why he chose Luther as this year’s featured artist, he said, “Luther had strong ties to the Apollo, starting with ‘Listen My Brother.'” A teenage Luther Vandross was part of Apollo’s musical ensemble, Listen My Brother, which performed several times on Sesame Street during its early seasons.
Every year, there’s an independent film tied into the celebration, along with multiple mini-concerts featuring local independent artists performing songs by their legends.
“I’ve always been into radio,” adds Marko. His company, Rhythm, and Soul Radio was born from his weekly Tuesday night WHUR radio show on City College, which follows our friend Alyson Williams’ program.
Like the upcoming Luther Celebration in Harlem, Marko’s internet-based Rhythm and Soul Radio channel celebrates independent artists.
On this Divabetic podcast, writer Clarence Waldron talks about his stroke, recovery, working as Senior Editor and Writer of Jet Magazine, and his memories of Luther Vandross and Aretha Franklin.
In the documentary, I discuss the traumatic moment when I discovered Luther after he suffered a stroke related to mismanaged type 2 diabetes. Unfortunately, Luther’s recovery was short-lived; he passed away in 2005.
Twenty years ago, Clarence interviewed Luther’s mother, Mrs. Mary Ida Vandross, for Jet Magazine after Luther suffered a stroke due to mismanaged type 2 diabetes. Clarence and Marko’s stories are excellent reminders of why it’s essential to ACT F.A.S.T. if you or a loved one is experiencing a stroke. The acronym FAST (Facial drooping, Arm weakness, Speech difficulties, and Time) has been used by the National Stroke Association, American Heart Association, and others to educate the public on detecting stroke symptoms.
I styled one of Luther’s outfits for the “I Know” album uncredited. At the time, Luther had gained considerable weight and was not interested in clothes or being photographed.
By this time in my tenure with Luther, I knew I had to bring some clothes (in his sizes) to supplement what the stylist had brought to shoots. I found a navy blue Polo Anorak jacket with a white stripe down the sides at Bloomingdale’s that camouflaged his size. Much to Luther’s dismay, the photographer shot Luther on the back of the set piece. It was a bare wood wall. I think I kept the jacket George Corsillo, who designed Luther’s album covers starting with the Night I Fell In Love, was involved in the shoot. If I recall, Luther loved the cover design from the first minute he saw it.
Thank you for the kind comments about my appearance in the documentary. Initially, I was apprehensive about appearing in the film. But as many of you know, I dedicated my life to diabetes outreach after Luther’s debilitating stroke related to mismanaged type 2 diabetes. The need to raise awareness for preventing a stroke or diabetes-related complication from occurring far outweighed my doubts or insecurities. The trauma I experienced from Luther’s health crisis will always be heavy on my heart. I hope sharing my story will empower you and your loved one to make time to manage your health.
Outside the Tribeca Film Festival screening of “Never Too Much” with Fonzi Thornton, James Ervin (Luther Vandross‘s choreographer, me, Catherine Schuller (Divabetic Image and Style Advisor, and Seveda Williams (Luther Vandross‘s niece).
Until now, I have refrained from discussing the documentary out of consideration for friends and colleagues who were not featured. I am grateful to have been included, but seeing myself on screen shattered any illusions that I resemble Brad Pitt (LOL).
Watching myself relive the experience on screen was difficult, but knowing the path I chose in response to it made me feel proud.
Many people have told me that my scenes brought tears to their eyes. I was able to speak openly and honestly about Luther’s health crisis because of my ongoing work with Divabetic and the members of the Divabetic community.
If I had continued to work in entertainment instead of diving headfirst into diabetes outreach after Luther’s stroke, I don’t think I could have revisited my experience in such a candid and vulnerable way. More importantly, I feel I delivered a powerful message on why making time to take care of yourself and your health is essential.
The Luther Vandross: Never Too Much documentary spotlights many of his incredible performances, which will thrill fans.
However, the documentary also includes a cautionary message about the dangerous effects of weight cycling, known as ‘yo you dieting’ on your heart, that should not be ignored.
Regaining weight stresses your heart and blood vessels. A study showed that the more your weight goes up and down, the more you’re likely to have problems like angina, heart attack, and stroke. And the bigger the swings, the bigger the risk.
Dieting isn’t easy. Every ounce of weight gain and loss can toy with your mind, body and spirit. Seek professional help if you’re struggling with these issues.
George Corsillo, who designed Luther’s album covers starting with the Night I Fell In Love, was involved in the shoot. If I recall, Luther loved the cover design from the first minute he saw it.
