Tag: misdiagnosis

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Don’t Miss Divabetic’s First Podcast In 2023

Mr. Divabetic talks with international yoga teacher and author Rachel Zinman, living with LADA diabetes, on Divabetic’s popular podcast on Thursday, January 19, 2023, at 6 PM, EST.

Rachel shares how she overcame the years of frustration and confusion associated with a misdiagnosis.

There have been many bumps in the road on Rachel’s journey with LADA diabetes (latent autoimmune diabetes in adults) related to her initial misdiagnosis.  She was initially misdiagnosis with type 2 diabetes. Although many of her symptoms were similar to type 2 diabetes,  she has another condition that may be more closely related to type 1 diabetes called latent autoimmune diabetes in adults (LADA).

It’s not uncommon for someone with LADA to be initially misdiagnosed. Unfortunately, the years spent treating the wrong condition without success can take a toll on your mind, body, and spirit. She shares how yoga and meditation helped her to overcome years of frustration and confusion.

Rachel shares a guided meditation, “Compassion Meditation,” focusing on self-love and compassion to help you live well with diabetes. Rachel’s meditation references Tara, a female deity in both Hinduism and Buddhism. Tara personifies compassion and offers salvation from suffering. She is thought to have been born of empathy for the suffering world and is regularly invoked for protection, guidance, and deliverance from difficult situations.

In Hinduism, she is the second of the ten Mahavidyas, avatars of the great Mother Goddess Mahadevi.

In Buddhism, Tara is a savior deity who liberates souls from suffering. According to origin tales, she emerged from the tear of the bodhisattva Avalokitesvara who cried when looking upon the suffering world. She is therefore associated primarily with compassion but can take on many forms to help and protect her devotees.

In her book, Yoga for Diabetes: How to Manage your Health with Yoga and Ayurveda, Rachel Zinman shares her journey and the hard-won wisdom gained from her own experience of yoga and diabetes.

“If you are at all open or curious to learn about an ancient holistic way of healing and supporting the body, this book is for you. Zinman is clearly an expert and looks so glowingly healthy at 50 years old, one may wonder just how much benefit we too can get from incorporating some yoga into our lives.”—Diabetes Daily

 

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You Don’t Even Know My Type of Diabetes!

Diabetes is one of the most widely misunderstood conditions around, which is surprising considering its widespread.

There are four main types of diabetes: type 1, type 2, prediabetes, and gestational diabetes. But there are many types of diabetes, including Maturity Onset Diabetes of the Young (MODY), Latent autoimmune diabetes in adults (LADA). There’s even a proposed term for Alzheimer’s disease because of the strong link between Alzheimer’s and blood glucose levels in the brain. Some experts suggest that there should be a Type 4 diabetes to describe cases of type 2 diabetes caused by aging rather than diet or genetics.

Unfortunately, these new discoveries haven’t hit the streets yet. In fact, the general public seems to be completely unaware that there is more than one type of diabetes. Add to that, some leading public health organizations aren’t helping to clear up the matter. 

NPR reports a 2016 National Health Interview Survey (NHIS) failed to ask respondents to clarify which type of diabetes they live with. 

“Comingling of the data, particularly from the leading national public health institute of the United States, perpetuates the myth that diabetes is one disease sharing a name, while the reality is that Type 1 and Type 2 diabetes are actually two different diseases in the diabetes family,” TD1 Exchange’s executive director Dana Ball and chief medical officer Dr. Henry Anhalt wrote in an open letter. 

More than 34 million people in the United States have diabetes, and 1 in 5 don’t know they have it. More than 88 million US adults—over a third—have prediabetes, and more than 84% of them don’t realize they have it. “

Lack of awareness from both patients and healthcare providers can play havoc with someone’s health. Many people are misdiagnosed with the wrong type of diabetes and struggle to manage their health and related issues of fear, confusion, and shame.

Healthline reports that research published in the journal Diabetologica in 2019 found evidence that more than one-third of adults over age 30 who receive an initial diagnosis of T2D may actually have T1D.

n a commentary about those research findings, Dr. Naveed Saleh wrote that “misdiagnosis… may persist even years later and lead to adverse health outcomes without proper treatment.”

Alicia Keys’ hit song, You Don’t Know My Name inspired this blog post.

I feel strongly that you can’t really be treated appropriately for your diabetes health unless your doctor knows who you are, starting with your name!

To me, it takes two to tango. It’s up to you to share personal information about yourself at your doctor’s appointments. How you feel physically, emotionally, and mentally is the starting point.  But opening up about your daily routines, habits, personal idenitity, feelings of loneliness, and social isolation can help your healthcare provider personalize your care.

It makes sense, right?

To provide the best care, your doctor must understand you and know what your life is like.

Sometimes this can feel uncomfortable.

Today, I know that sharing my sexual identity with my doctors is critical to my care. But that doesn’t negate that I  struggled with coming out to my doctors back in the late ’80s. Hopefully, my journey and Alicia Keys can inspire you to be open and honest with your doctor. It will help them to understand your medical conditions fully and recommend the best treatment choices for you.

Let’s not forget that knowing how to describe your symptoms accurately is helpful too.  

 

 

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Former Soloist Ballerina Zippora Karz Guests On Divabetic’s Diabetes Late Nite Podcast

“For many years, I struggled silently, trying to hide the fact that I was in over my head and I didn’t know if I could keep dancing. I didn’t have a diabetes educator, and I didn’t have a doctor who understood. I was misdiagnosed with type 2 diabetes because I was in my early twenties,” says Former Soloist Ballerina Zippora Karz, living with type 1 diabetes, on Divabetic’s Diabetes Late Nite podcast featuring music by Christina Aguilera.

Zippora joined the New York City Ballet at seventeen in the 80s. She danced to George Balanchine’s ballets every night.

What’s life like for a ballerina?

“You are creating a new vocabulary within your body. You have to work on it every day. We take morning classes to improve your legs’ line and your jumps and turns because it’s not natural. And then, you a different program every night. A six-hour rehearsal day, and then you perform that night.”

“I was in my third year with the ballet when I was diagnosed with diabetes,” says Zippora. “However, my doctors didn’t understand the athleticism and energy output of a ballerina.

So what kept her going?

“I felt pressure to prove that nothing changed. But the magic I experienced dancing was so intense that I had to keep going and had to preserve.”

Former New York City Ballet Soloist Ballerina & Author (Sugarless Plum) Zippora Karz is a guest on this episode of Divabetic’s Diabetes Late Nite podcast. We Are Diabetes founder Asha Brown, Best-Selling Author Tonya Kappes, Patricia Addie-Gentle RN, CDE, and Mama Rose Marie.

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La, LADA Means You Love Yourself Enough To Take Action

Once again we’re attempting to build a bridge between music and diabetes health with this Divabetic blog post.

Several women in the Divabetic community have shared their stories of being misdiagnosed with type 2 diabetes when they actually have latent autoimmune diabetes (LADA).

It’s understandable because LADA shares symptoms that correlate with both type 1 and type 2 diabetes. In fact, LADA often masquerades as type 2 diabetes, given its adult onset and delayed need for insulin treatment. 

But imagine what it feels like to follow your doctor’s guidance word for word and still experience high blood sugars.

You may feel flustered and frustrated. You may feel like you’re spinning your wheels. You may just give up!

That’s why we’d like to urge you to  love yourself enough to take action.

It’s not easy to overcome feelings of anger and annoyance to advocate for one’s health especially if you don’t think your doctor is listening to you. This actually happened to Mila Clarke Buckley, who is known on social media as ‘The Hangry Woman‘.

“In 2016, at 26 years old, I was diagnosed with type 2 diabetes. About a year into my diagnosis, I talked to someone who said my diagnosis didn’t sound right at all, that I should get the GAD65 test. I asked a couple of doctors, but they shrugged me off. On August 4, 2020. I found out that I have LADA – Latent Autoimmune Diabetes in Adults, ” she shared in a blog post.

February’s Divabetic Diabetes Late Nite guest, ‘The Hangry Woman’ shares how she managed to overcome a misdiagnosis to become a powerful diabetes advocate on Tuesday, February 16, 2021, 6 PM, EST. Tune in to the conversation using the link below:

 

 

Let Mila Clarke Buckley inspire you to seek out a second opinion if you’re following your doctor’s guidance for managing type 2 diabetes but still experiencing with chronic high blood sugars. The only way to confirm a diagnosis of LADA is through a blood test that checks for antibodies against the insulin-making cells of the pancreas. Your doctor may also check for levels of a protein called C-peptide to get information on how much insulin your body is making.

We’re dedicating  ‘La La Means I Love You’ by the Delfonics to all the amazing divas living with LADA who advocated for their health.

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Could You Have Been Misdiagnosed With Type 2 Diabetes?

A recent study in Diabetologia found that 21% of people initially diagnosed with type 2 diabetes after the age of 30 and treated with insulin actually had type 1 diabetes as reported in diaTribe. A striking 38% of those with late-onset type 1 did not immediately receive insulin – putting them at high risk of diabetic ketoacidosis (DKA). Of those with late-onset type 1 diabetes, 85% required insulin within one year of diagnosis. Indeed, if insulin treatment is required within three years of diagnosis with type 2 diabetes, there is a high likelihood that a type 1 diagnosis was missed.

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What’s it like to live with type 1 diabetes for 50 years?

Catherine Lawrence shares her experience living with type 1 diabetes for 50 years on Divabetic’s 9th Year Anniversary Diabetes Late Nite podcast with musical inspiration from P!nk.

P!nk’s new album, Hurts 2B Human features the singer teaming up with Chris Stapleton, Khalid and more on her passionately confessional eighth LP. 

Pink sings “I abhor reality” on the sugary dance song “Can We Pretend” featuring Cash Cash. But when she digs into what’s getting her down, it’s the most brazen and heartbroken she’s ever sounded. On the Sia-cowritten “Courage,” Pink’s voice swings up the scale on its own chandelier. “I don’t have to do this perfectly,” she sings. “Happy” (co-written by Teddy Geiger and Sasha Sloan) reminds us she is also the patron saint of the Missundaztood: “Can somebody find me a pill to make me unafraid of me/ Maybe I’m just scared to be happy,” she sings.

Guests include Beyond Type 2’s T’ara Smith, Catherine Lawrence , Dr. Sara (Mandy) Reece PHARMD, CDE, BC-ADM, BCACP, FAADE, Poet Lorraine Brooks, Glamazon Beauty owner Kim Baker, and the Charlie’s Angels of Outreach. Hosted by the happiest health care “MC,” Max “Mr. Divabetic” Szadek. 

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