Shame And Diabetes

The bedrock of my advocacy work for the diabetes nonprofit Divabetic has been helping women and their loved ones affected by, at risk, and living with type 1, type 2, and prediabetes overcomes shame.

As an openly gay man, I am acutely aware of how toxic shame can be in your life and the obstacles and barriers it can create to prohibit you from achieving your health and life goals.

In 2003, when I began my diabetes outreach efforts, I instantly recognized a similarity between my experience of accepting my sexuality and the experience of many people receiving their diagnosis. This connection pushed me to add layers of empowerment, self-love, and pride to traditional diabetes educational programming.

Accepting yourself (and your health) is a fluid, ongoing experience. After 30 years, I have good days and bad days. Being gay has been a superpower and a cross to bear. I can walk through life unnoticed or be the target of hate and blame for no apparent reason. At times, I still stumble with my confidence and resolve around my identity, so I can understand why, after two decades of dealing with the daily grind of diabetes, people throw up their hands rather than roll up their sleeves.

Recently, I was called out for being ‘obviously gay’ by two film reviewers who reviewed the Luther: Never Too Much documentary even though I made no mention of my sexuality. I was left scratching my head after hearing their comments about me. I can only hope that someone struggling with their sexuality sees me on screen and finds comfort and connection. I didn’t have many older role models to turn to when I was coming out during the AIDS crisis, so it would be a blessing to be one of the next generation.

Experts advise you to accept love and kindness from others, explore positive traits to help overcome feelings and thoughts related to shame, and share your experience living with diabetes to help conquer misinformation. This advice, taken as a whole, can be overwhelming. If you feel that way, you’re not alone. Hopefully, you will turn to Divabetic on the bad days for encouragement and be a source of encouragement for others by sharing your experience on the good days.

This week has been a source of celebration for some and distress for others in our community. I am laser-focused on continuing to build a bridge between all the different types of divas and their loved ones, creating strength through support and being a bright light in moments of despair for everyone. Shame has an insidious way of showing up at the absolutely wrong times in your life to knock you down and out.

Please continue to turn to us and allow us to turn to you to empower each other to dazzle in our diabetes lives.

Max Szadek Interviewed on Solar Radio’s Soul Life


I was thrilled to be interviewed by Richard Marzetti on his Soul Life show on the UK radio station Solar Radio. Richard’s show features an uplifting selection of the newest and contemporary soul releases, classics, and modern goodies.

I discussed my experience working for Luther Vandross. Thirty years ago, Luther changed my life when he relocated me from San Francisco to New York to become his full-time assistant. I was a big Luther fan before I started working for him, and I became an even bigger fan while working alongside him.

After Luther had a stroke due to mismanaged type 2 diabetes, I became his caregiver. During that time, I began my work as a diabetes advocate, which led to the creation of Divabetic, the national diabetes organization. Through live programs, videos, podcasts, and Zoom programs, I aim to empower women and their loved ones to stay upbeat about their diabetes care and create an ‘entourage of care’ of friends, family members, and healthcare collaborators to help them stay on track with their self-care management.

Luther Vandross was an incredible entertainer with an exceptional eye for detail. Luther invested in his live shows to create memorable experiences for his fans.

From his beautifully designed, crystal-encrusted costumes and Art Deco-style stages to evocative lighting and elegant choreography, Luther, his band, and his vocalists took audiences on an emotional journey with his music.

Don’t Miss Max Szadek On Solar Radio

Wow, Wow, Wow! I’m excited to be a guest on Richard Marzettis upcoming Soul Life program on Solar Radio! I can’t wait to share my memories of working for Luther Vandross.

Growing up, I listened nonstop to Rochester, New York’s WDKX. Sometimes, I pinch myself when I realize I worked for one of R&B’s biggest stars. I owned every Luther album! To this day, it still seems unreal that a kid from Rochester would one day get the opportunity to work for Luther Vandross.

Amazingly, I started working on the Never Let Me Go tour thirty years ago.

Just so you know, I was a big Luther fan, just like the listeners of Solar Radio, before I began working for him. I’m really thankful to his fans for keeping Luther’s music legacy alive and for those new and old fans who strive to prevent mismanaged diabetes complications such as stroke from occurring by managing their diabetes daily to ‘keep their house a home.’

Being featured in the Luther: Never Too Much documentary is an honor, and I feel privileged to represent the hardworking, talented, caring, and supportive people who worked behind the scenes for Luther. Working on a tour in the wardrobe department for Luther was indeed the gold standard.

I’ve been hooked since my friend Mark Love introduced me to the UK’s Solar Radio a few years ago. Their fantastic mix of new and classic R&B, gospel, and dance music is incredible!

It’s been a joy to hear Richard Marzetti feature my music, Mama’s Kitchen Table by Ivan Hampden Jr. and Paulette McWilliams, and Standards by Crystal Penny on previous programs.

Sharing a new unreleased, hidden gem by Luther on this program (thanks to SONY Legacy) and a song by a good friend is just the cherry on top! I hope you can tune in on Friday!! I’ll post a link in the comments section.

The Palace and America’s Most Beautiful Historic Theaters

Throughout the past year, I’ve had the opportunity to visit several stunning historic theaters across the country. Some of my favorite theaters include the Carpenter Theater in Richmond, the Temple Theatre in Saginaw, the Granada Theater in Santa Barbara, and the Palace Theater in Waterbury. While many may not consider touring theaters when visiting cities, these venues offer a remarkable insight into entertainment history. Most of these theaters were constructed in the 1920s, initially serving as vaudeville houses before transitioning into movie theaters with Wurlitzer organs accompanying silent films and eventually returning to hosting live performances.

The Palace Theater, with its luxurious tomato-red velvet curtain, has hosted a myriad of iconic performers over the years, from Frank Sinatra, Bing Crosby, and Jackie Gleason to Fleetwood Mac, Bob Dylan, and the Grateful Dead.

In 1924, during a performance by magician Harry Houdini, a crew had to cut an 8-foot-wide hole in the stage floor for a trap door. The hole was later patched up. Unfortunately, when Ringling Bros and Barnum & Bailey Circus visited, an elephant named Shirley fell through the patched hole from Houdini’s act several years earlier. Sadly, the management had to put the animal down as they could not rescue it. Shirley, the elephant, is now part of Palace Theater lore as one of the four friendly spirits that supposedly haunt the theater.

In contrast to today’s black box-style theaters designed to accommodate various stage productions, these historic theaters, with their gleaming neon marquees, elegant lobbies, gold detailing, crystal chandeliers, and Art Deco carvings, were solely intended to transport their audiences from the mundane of everyday life to a magical world. The sumptuous plushness of the velvet seats instantly makes you feel like you’re about to experience something extraordinary.

During the pandemic, people stopped attending live shows for health and financial reasons. Still, they continued to stream music, films, and TV in record numbers, proving that entertainment is a necessary commodity. Divabetic’s podcasts, virtual workshops, and YouTube videos also experienced an uptick. There was a prevailing notion that live theater was a luxury. If that notion still holds, creating elaborate, glamorous theater spaces that encourage people to dress up, celebrate, and experience the joys of life is truly invaluable.

Watching performances by Itzhak Perlman and Rohan De Silva in these beautiful settings is a treasure.

We’re talking about movie characters with diabetes, including Steel MagnoliasSoul FoodMad MoneyThe Baby-Sitter Club, and Nothing In Common. How realistic are these portrayals? How accurate is information about diabetes and diabetes self-care?  And how do we feel after viewing them?  With all the emotional and physical complications comes drama, making characters with the condition a good plot point on the silver screen.

Guests include Patricia Addie-Gentle RN, CDE, Glucose SOS founder Pamela Heyward, Constance Brown-Riggs MSEd, RD, CDE, CDN, Kent Gash, Jessica Clark, and Muniq Gut Health Shakes Founder Marc Washington.  

Throughout this podcast, we will feature music from the album Score by 2Cellos, courtesy of SONY Music.

Divabetic’s monthly podcasts are dedicated to Music Lovers living with, at risk, and/or affected by diabetes. We aim to be the epicenter of the circle of care, a link between patients and their healthcare providers, a translator of clinical speak, and a bridge between denial and acceptance, fear and confidence.

Divabetic was inspired by the late music legend, Luther Vandross and created in 2005 by Max ‘Mr. Divabetic Szadek, who, as Vandross’ assistant of 14 years, witnessed his boss, mentor, and friend struggle in silence and solitude with diabetes and its related complications. 

Luther Vandross Documentary Opens Coming To Theaters In November 2024

Luther Vandross’s Never Too Much documentary opens in theaters starting November 1st!

I’ve seen it thrice and walked away with a different insight each time. One of the things I enjoy most is seeing Luther’s discipline, drive, and determination to succeed. It’s easy to think Luther had no trouble getting signed to a record deal, but the opposite is true. He spent his own money, earned from singing jiggles, to finance his demo and was rejected by several labels.

I never met anyone with his convictions. He taught me to believe in myself and my ideas and to invest in them.

The documentary relives the many stunning moments of Luther’s musical career while exploring his personal life, health struggles related to mismanaged type 2 diabetes, and a lifelong battle to earn the respect his music deserved.

Using a wealth of rarely seen archives, Luther tells his story with assistance from his closest friends, ME (!), and musical collaborators, including Mariah Carey, Dionne Warwick, Valerie Simpson, and Roberta Flack.

It’s strange to see yourself on screen and share such a traumatic experience. I am grateful to everyone who has supported, participated, and partnered with me with my diabetes nonprofit organization, Divabetic.

After Luther’s stroke, I could have left his side and found work supporting another musical artist. Instead, I chose a different path. I educated myself about diabetes (I have a family history of type 1 and type 2 diabetes) and helped educate and empower others so that we could all keep our house a home.

I still believe that’s the best way to honor Luther’s legacy.

Itzhak Perlman Peforms Back-To-Back Performances in Richmond, Virginia

This past weekend, Richmond, VA’s historic Carpenter Theater, built in 1926, was ablaze with back-to-back performances by Itzhak Perlman.

The legendary violinist has been a long-standing advocate for accessibility after being diagnosed with polio. I chose to seek employment working for Mr. Perlman after experiencing Luther Vandrosss difficulties using a wheelchair after suffering a stroke due to mismanaged type 2 diabetes.

I discuss finding Luther after his stroke in the Luther: Never Too Much documentary, which will be released on streaming platforms in January 2025.

I decided that if I returned to personal assistant work, I would prefer to work with an entertainer who requires my help beyond picking out the green M&Ms from a bowl in the dressing room. Mr. Perlman’s ongoing issues related to accessibility in travel and hotel accommodations piqued my interest. Helping a legendary performer of Mr. Perlman’s stature do what they love, like performing live for an audience, brings me joy.

His first performance, “Cinema Serenade,” featured film scores by John Williams, Ennio Morricone, and Erich Wolfgang Korngold.

Valentina Peleggi conducted this survey of cinema’s most moving melodies from iconic films such as Casablanca, Cinema Paradiso, Out of Africa, and many others.

Sunday’s “Afternoon with Itzhak Perlman” had the legendary violinist sharing childhood memories, telling jokes, and recalling career highlights interspersed between musical selections encompassing his phenomenal career. Itzhak Perlman’s back-to-back performances closed the Richmond Symphony‘s spectacular Strad Fest.

Luther: Never Too Much Documentary Trailer

Watch the trailer for LUTHER: NEVER TOO MUCH, an intimate look into a musical icon’s stunning life and career. From filmmaker Dawn Porter (John Lewis: Good Trouble), it features interviews with many of Luther’s closest friends, collaborators, me(!), and fans, including Mariah Carey, Dionne Warick, Valerie Simpson, Roberta Flack, Jamie Foxx, and more.

Luther fans will hear how he got his start after crashing a recording session for David Bowie’s Young Americans and becoming one of the most sought-after backup singers for artists such as Chic, Michael Jackson, Barbra Streisand, and Aretha Franklin before his 1981 solo breakout R&B hit Never Too Much.

The Here and Now artist suffered a stroke related to mismanaged type 2 diabetes in 2003. This inconceivable occurrence was the founding inspiration for me to start Divabetic. As Luther’s assistant, I wanted to encourage a new attitude about diabetes. One of our guiding principles is for people living with diabetes to create an entourage of care featuring family, friends, and healthcare collaborators to help with their self-care management.

Sadly, Luther was never able to recover fully. I stayed with him, supervising his care and rehabilitation until he died in 2005. Diabetes may have silenced one of the world’s greatest voices, but his worldwide influence endures.

Get inspired to stay healthy and upbeat about your self-care through Divabetic’s tribute podcasts, videos, Zoom meetups, and more.

Luther: Never Too Much documentary opens in theaters in select cities beginning November 1. Nationwide preview screenings October 30. Presented by Giant Pictures and CNN Films.

Spinning Around in The Soul Train Dance Line at the Luther Vandross Celebration in Harlem

Just wanted to share this amazing experience from Thursday night’s Soul Train Tribute to Luther Vandross at Marcus Garvey Park in Harlem, NY.

We kicked off the free outdoor screening of the Luther: Never Too Much documentary with a Soul Train Dance Line, and it was genuinely heartwarming to see so many people, including those using mobility devices, participating with such an upbeat attitude and joyful spirit.

It’s reported that as high as 80% of non-traumatic lower limb amputations happen due to mismanaged diabetes. Regardless of how or why someone experiences a lower limb amputation, it can stop them from wanting to take care of themselves and their diabetes self-care in the future. Allowing these people to still participate in social events and gatherings could boost their morale.

Moments like these remind me of the incredible resilience and determination of people facing challenges. Witnessing someone joining the Soul Train Dance Line on her scooter made me smile and brought back many beautiful memories of our past events.

We can’t wait to return to more outreach events soon to spread positivity and help everyone glamorize good health!

Free Screening of Luther: Never Too Much Documentary Tonight!

Join me tonight for the free screening of the Luther: Never Too Much documentary, live Luther Tribute performances by Keith Anthony Fluitt, and a Q&A Panel with Fonzi Thornton and Dawn Porter in Marcus Garvey Park in Harlem.

Knowing and working for such an incredible artist and caring man was an honor. It’s a privilege to appear in the documentary to raise awareness of the tragic consequences of mismanaged type 2 diabetes. Seeing the trauma I experienced in my face on screen as I recalled the initial moments after Luther’s stroke made me realize how grateful I am to everyone who has supported, encouraged, and partnered with me on my various diabetes outreach efforts through my nonprofit organization, Divabetic. Org

Sadly, I wasn’t able to help Luther initially after he suffered a stroke. Heed my advice: if you are someone you love who has experienced a stroke, don’t wait to seek help or try to sleep. Every minute counts. The longer a stroke goes untreated, the greater the potential for brain damage and disability.

Act F.A.S.T. to help identify the early signs and symptoms of a stroke:

F: Is there drooping on one side of the face? Is the person unable to smile? Has their mouth or eye drooped? 

A: Can the person raise both arms and keep them there? Is there weakness or numbness in an arm or leg? 

S: Is the person’s speech slurred or garbled? Are they unable to speak at all? Do they need help understanding what you’re saying to them? 

T: If you notice any of these signs, call emergency services immediately

If you’re a Luther fan, please, “Keeping Your House A Home” by learning how to prevent diabetes health-related complications such as stroke, kidney failure, lower limb amputation, and blindness has been my mission for the past 20 years, and it will continue to be.

If you see this documentary or love Luther’s music, you owe it to his legacy to educate and empower yourself about your health.

Luther Vandross Soul Train Tribute in Harlem

Join me for the upcoming ImageNation’s SOUL TRAIN Tribute to Luther Vandross on Thursday, September 5, 2024, at 6 PM, in Marcus Garvey Park in Harlem, NY.

It’s going to be a sensational night celebrating Luther’s legacy. The night starts with DJ Stormin Norman and a Soul Train Dance Line. Several local performers will perform, including Chandlar and Karen J, Chris Rob, Heshima, Michael Pollydore, and our friend Keith Anthony Fluitt. Keith performed a few of Luther’s iconic hits at Divabetic’s Luther Vandross Music & Style Celebration in April. 

After the outdoor screening of the Luther: Never Too Much documentary, Director Dawn Porter and singer and songwriter Fonzi Thornton participate in a Q&A session.  
The celebration continues with an AfterParty featuring live bands and a DJ interweaving Luther Tributes in their sets at Shrine World Music Venue, 2271 Adam Clayton Powell Jr Blvd between 133rd & 134th Streets, New York, NY 10030.

Earlier this week, I spoke to one of the event organizers,  Joy Enterprises’ Marko S. Nobles, owner of Rhythm and Soul Radio.  Marko spent years learning, growing, and becoming an experienced PR, Marketing, Radio, Event Production, and Entertainment professional.

Marko’s Rhythm and Soul Radio played Ivan Hampden Jr. and Paulette McWilliams‘ song “Mama Kitchen Table” last summer. Paulette and I wrote the lyrics to this song, which topped the UK Soul Charts. Marko, a stroke survivor, said Joy Enterprises hosts a Soul Train Tribute every year to celebrate Don Cornelius‘s legacy of Don and the artists who appeared on Soul Train. Past honorees include superstars Stevie Wonder, Prince, Aretha Franklin, and James Brown.  

“I grew up on Soul Train,” says Marko. “It was a Saturday morning staple in our households.” When I asked Marko why he chose Luther as this year’s featured artist, he said, “Luther had strong ties to the Apollo, starting with ‘Listen My Brother.'” A teenage Luther Vandross was part of Apollo’s musical ensemble, Listen My Brother, which performed several times on Sesame Street during its early seasons.

Every year, there’s an independent film tied into the celebration, along with multiple mini-concerts featuring local independent artists performing songs by their legends. 

“I’ve always been into radio,” adds Marko. His company, Rhythm, and Soul Radio was born from his weekly Tuesday night WHUR radio show on City College, which follows our friend Alyson Williams’ program. 

Like the upcoming Luther Celebration in Harlem, Marko’s internet-based Rhythm and Soul Radio channel celebrates independent artists.

On this Divabetic podcast, writer Clarence Waldron talks about his stroke, recovery, working as Senior Editor and Writer of Jet Magazine, and his memories of Luther Vandross and Aretha Franklin.

In the documentary, I discuss the traumatic moment when I discovered Luther after he suffered a stroke related to mismanaged type 2 diabetes. Unfortunately, Luther’s recovery was short-lived; he passed away in 2005.

Twenty years ago, Clarence interviewed Luther’s mother, Mrs. Mary Ida Vandross, for Jet Magazine after Luther suffered a stroke due to mismanaged type 2 diabetes. Clarence and Marko’s stories are excellent reminders of why it’s essential to ACT F.A.S.T. if you or a loved one is experiencing a stroke. The acronym FAST (Facial drooping, Arm weakness, Speech difficulties, and Time) has been used by the National Stroke Association, American Heart Association, and others to educate the public on detecting stroke symptoms.

I styled one of Luther’s outfits for the “I Know” album uncredited. At the time, Luther had gained considerable weight and was not interested in clothes or being photographed. 

By this time in my tenure with Luther, I knew I had to bring some clothes (in his sizes) to supplement what the stylist had brought to shoots. I found a navy blue Polo Anorak jacket with a white stripe down the sides at Bloomingdale’s that camouflaged his size. Much to Luther’s dismay, the photographer shot Luther on the back of the set piece. It was a bare wood wall. I think I kept the jacket 🙂 George Corsillo, who designed Luther’s album covers starting with the Night I Fell In Love, was involved in the shoot. If I recall, Luther loved the cover design from the first minute he saw it.