Diagnosis To Diva Stories: My Type 1 Diagnosis Was A Scene From A Fellini Movie

Hearing you’ve just been diagnosed with diabetes can be difficult. And painful. Still, February’s Divabetic podcast guest, Fran Carpentier, describes her experience like a scene from a Fellini movie. 

The Brooklyn-born media maven was diagnosed with type 1 diabetes at age fourteen. Fran remembers the weeks before her diagnosis, “having rapid weight loss, unquenchable thirst, and exhaustion. it was bad.”Although her type 1 diabetes diagnosis was life-changing, Fran admits that her Italian mother, Stella, provided some much-needed yet unintended comic relief in the doctor’s office. “Naturally, I was scared and very nervous,” Fran recalls. “However, when the doctor uttered the diagnosis—’Frances has diabetes‘— my mother fainted and collapsed onto the floor.  Her sister, my Aunt Elizabeth, and I had to pick her up. We kept fanning my mom while Dr. Handelsman—a renowned diabetologist of the time—attempted to reassure her about my diagnosis. First, he tried to calm down my mother by telling her that I was fortunate to be diagnosed when I was and not forty years earlier. He went on to explain that the reason I was ‘lucky’ was because today we had insulin; a few decades earlier, I’d be dead. When my mother heard the word ‘dead,’ she collapsed and fainted again.”

The doctor pulled Fran aside and said, “I usually put a newly diagnosed child with juvenile diabetes [which is what type 1 was called in those days] in the hospital for a week.” Back in 1969, which is when Fran was diagnosed, hospitalization for diabetes was pretty typical. Dr. Handelsman continued, “But I can tell that, if I put you in the hospital, I would need at least two beds—one for you, and one for your mother.” 

The good doctor added, “So, instead of sending you to the hospital, my nurse will teach you how to give yourself insulin injections, then I’m going to send you home. Come back tomorrow and we’ll teach you more about how your daily life will be from now on.” 

The Carpentier family’s theatrics continued after they got home from the doctor’s office. “That same evening, my mother’s ten sisters came over to our house to ‘mourn’ me,” says Fran. “To this day, I blame their reaction on the ignorance and fear that was associated with diabetes then. Sadly, a lot of ignorance and fear are still prevalent today.”

If all that extra drama seems almost too much to handle, then you don’t know Fran, who went on to explain, “Later on in bed that first night, I told myself that God must have sent diabetes to me for a reason. Somehow, that outlook served to motivate me in managing my diabetes for the past fifty years.”

She adds, “I think I had enough of a sense of self to not be ashamed of my condition. I spent a lot of time in the early days allaying my parents’ fears.”

For the past fifty years, Fran Carpentier has been an outspoken diabetes advocate, passionate fundraiser, and Divabetic inspiration in her personal and professional life. 

For close to three decades, Fran worked as the Senior Editor at Parade, the national Sunday newspaper magazine that, during her tenure, reached more than 70 million readers every week. Fran had the opportunity to meet celebrities, best-selling authors, thought leaders, leading doctors, and top scientists in diabetes. “As a journalist, I had direct access that got me in front of as many diabetes experts as possible. Then, every November, I would oversee an article on diabetes in the Sunday issue. Our goal was to share with our millions of readers what was new in diabetes and where everyone—including people living with diabetes, their families, their friends, their co-workers—could find hope.” 

In 2006, I met Fran Carpentier for the first time when she attended Divabetic Makeover Your Diabetes national outreach program at Gotham Hall in New York City. At the time, she was still working for Parade. She remembers attending our ‘Glam More, Fear Less’ style event offering one-on-one diabetes education with free makeover services as “the fun and fabulous.” In addition, she says, “The men and women at the Divabetic program had really great energy.”

Hear more of Fran’s funny and fascinating memories of living with type 1 diabetes on Divabetic’s February podcast. 

Former Soloist Ballerina Zippora Karz Guests On Divabetic’s Diabetes Late Nite Podcast

“For many years, I struggled silently, trying to hide the fact that I was in over my head and I didn’t know if I could keep dancing. I didn’t have a diabetes educator, and I didn’t have a doctor who understood. I was misdiagnosed with type 2 diabetes because I was in my early twenties,” says Former Soloist Ballerina Zippora Karz, living with type 1 diabetes, on Divabetic’s Diabetes Late Nite podcast featuring music by Christina Aguilera.

Zippora joined the New York City Ballet at seventeen in the 80s. She danced to George Balanchine’s ballets every night.

What’s life like for a ballerina?

“You are creating a new vocabulary within your body. You have to work on it every day. We take morning classes to improve your legs’ line and your jumps and turns because it’s not natural. And then, you a different program every night. A six-hour rehearsal day, and then you perform that night.”

“I was in my third year with the ballet when I was diagnosed with diabetes,” says Zippora. “However, my doctors didn’t understand the athleticism and energy output of a ballerina.

So what kept her going?

“I felt pressure to prove that nothing changed. But the magic I experienced dancing was so intense that I had to keep going and had to preserve.”

Former New York City Ballet Soloist Ballerina & Author (Sugarless Plum) Zippora Karz is a guest on this episode of Divabetic’s Diabetes Late Nite podcast. We Are Diabetes founder Asha Brown, Best-Selling Author Tonya Kappes, Patricia Addie-Gentle RN, CDE, and Mama Rose Marie.

Reflections of a Unicorn with Type 1 Diabetes by Beverly S. Adler, PhD, CDCES, Part 4

The Past 20 Years

In 2001, I returned to my career. The question was: what did I want to do? In my heart of hearts, I wanted to work with people with diabetes. And so, it started. I worked per diem at a local hospital’s counseling center establishing myself as their diabetes expert. I spoke to diabetes support groups and I earned my credential as a “CDE” (known then as Certified Diabetes Educator, now referred to as “CDCES” Certified Diabetes Care and Education Specialist). In 2004, I took the big leap and I started my own full-time private practice.  Notable special achievements (besides my two children) were my two books.  In 2011, I published my first book “My Sweet Life: Successful Women with Diabetes.” In 2012, I published my second book “My Sweet Life: Successful Men with Diabetes.” Both books include insightful lessons of empowerment written by successful men and women with diabetes.

I’ve been honored to present several Invited Addresses. Included in those was the Keynote Address, sponsored by Divabetic.org, at their Victory Over Diabetes outreach event, presented with the Center for Urban Health at Thoms Jefferson University Hospital in Philadelphia, PA. in November 2015. My topic was: “Combining Cognitive Behavior Therapy and a Spiritual Approach to Achieve Diabetes Acceptance.” I’ve also been honored to receive many achievement awards throughout my career, too numerous to mention.

In March 2020, I experienced a new challenge to my health.  I contracted the Coronavirus. Thankfully, I was not admitted to the hospital; I was able to manage on my own. I had a low-grade fever for two weeks, no appetite, no energy, and very high blood sugars. I tried to stay hydrated (and used sugar-free flavor packets with electrolytes poured into my water bottles). One year later, I am suffering from post-COVID syndrome, also known as “long haulers syndrome,” with extreme fatigue. Despite my extreme fatigue I continue to treat my patients. The pandemic has had a psychological impact on everybody. I see more patients now struggling with mental health concerns, such as stress and anxiety, depression and bereavement.  If anybody is reading this and you feel you need some extra emotional support, please reach out to your healthcare provider or your local hospital for assistance.

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Dr. Beverly S. Adler PhD, CDCES has published two books which include insightful lessons of empowerment written by successful men and women with diabetes. Available for purchase.

Dr. Beverly S. Adler PhD, CDCES guests on Divabetic’s Diabetes Late Nite podcast with music from Anthony Hamilton. Throughout the podcast, we will be featuring songs from Home For The Holidays courtesy of SONY MUSIC.

Reflections of a Unicorn with Type 1 Diabetes by Beverly S. Adler, PhD, CDCES, Part 3

The Middle Years of Living with Diabetes

By the mid-80’s my insulin regimen involved four shots per day: 3 fast-acting insulin shots (bolus) to be taken prior to each meal and 1 long-acting insulin shot (basal) taken before bed. I was now using a blood glucose meter to help manage my blood sugar. However, pregnancy presented new challenges for me. Insulin demands tripled over the course of nine months. I took extremely good care of my diabetes in order to keep my unborn baby safe. In 1988, I gave birth (via C-section delivery) to a healthy son weighing under 9 pounds. In 1990, I was pregnant again but I experienced a miscarriage in my 11th week of gestation. It was devastating to me (and I rarely talk about it to this day). My gynecologist claimed that the miscarriage was the result of my poor diabetes management. My diabetologist*, Dr. Henry Dolger, disagreed with that assessment. He told me that 20% of pregnancies end in miscarriage and it was totally unrelated to my diabetes self-care. In 1992, I was pregnant again and gave birth (via C-section delivery) to a beautiful baby girl weighing under 9 pounds. I happily devoted the next decade to exclusively raising my children.

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*A diabetologist is a doctor who specialises in the treatment of diabetes.

Dr. Beverly S. Adler PhD, CDCES has published two books which include insightful lessons of empowerment written by successful men and women with diabetes. Available for purchase.

 

MY SWEET LIFE: Successful Women with Diabetes by Beverly S. Adler, PhD, CDCES and Friends is a collection of life stories – each chapter written by a highly respected successful woman with diabetes. This group of diverse women share their stories how they find balance between managing their careers and/or family AND managing their diabetes.

The book is compiled by Dr. Beverly S. Adler who is also one of those women. “Dr. Bev” as she is better known, is a clinical psychologist and Certified Diabetes Educator in private practice, specializing treating patients with diabetes and also has had type 1 diabetes for 37 years. All those years ago when she was diagnosed, there were no role models with diabetes for her. This book is geared for women with diabetes who need role models who can inspire them. The book is written for the newly diagnosed woman with diabetes who is overwhelmed with her diagnosis. Or, for the woman who has had diabetes for a while, but can also benefit from uplifting, inspirational stories to encourage and motivate self-care (especially if they already are trying to cope with some complications).

Dr. Bev is joined by 23 contributing authors who are all women of exceptional accomplishments! Each story is unique and heartwarming, as these very special women share their triumph over diabetes. The reader can learn how the women’s experiences with diabetes helped to shape them into who they are today. The theme running through the book is that “diabetes is a blessing in disguise.”

 

Join the happy healthcare host, Mr. Divabetic and very special guest, Dr. Beverly S. Adler,PhD, CDCES on this episode of Divabetic’s popular podcast. Known as “Dr. Bev,” to her patients, this Baldwin, NY, self-proclaimed “Diabetes Diva” is uniquely qualified to treat patients with diabetes. Dr. Bev has firsthand experience living with Type 1 diabetes for 35+ years. Hear her personal philosophy and learn how she empowers the lives of others living with diabetes. As we celebrate Women’s History Month, find inspiration in “herstory!”