diabetes advocate – Divabetic

10/15/2021

Why We Need Weight-Neutral Approach For Diabetes Management

Plus-size Fashion and Travel Blogger, LGBTQ+ Influencer Alysse Dalessandro Santiago shares how seeking out a weight-neutral doctor’s approach helped her improve her diabetes self-care on October’s Divabetic Podcast with music from Carly Simon.

Alysse says, “It’s taken me a long time to be my own healthcare advocate and challenge the pervasive narrative around plus-size or larger-bodied people living with type 2 diabetes.”

Alysse told her doctor, “I am here for diabetes management. I understand that you have been trained to look at my weight as an indicator of my health. But I look at my A1C as an indicator of my health, so can we focus on that?”

She encourages other plus-size and larger-bodied people to advocate for their diabetes health. “Doctors are there to help and care for you. Their job is to care for you as an individual. When a doctor looks at you as a number on a chart or on the scale, they’re not looking at you as an individual. So if you don’t feel like they are listening to you, then you need to leave and find someone else.”

Alysse’s proactive approach to finding a weight-neutral doctor paid off! Finally, she can focus on the tools she needs to have tighter blood sugar management than the scale numbers. One self-care tool that she loves is the FreeStyle Libre Continuous Glucose Monitor (CGM) System. Alysse says the FreeStyle Libre has helped her to lower her A1C from 11 to a 7. But that’s not all! An added bonus of using the FreeStyle Libre for Alysse has been avoiding triggers related to her binge eating disorder.

“The FreeStyle Libre holds me accountable and tunes me in.” She adds, “The FreeStyle Libre’s alarms make me say, Hey, I emotionally feel like I want to eat, but physically I’m not actually hungry. My blood glucose levels are high, and I should not be eating right now. I’m emotionally hungry. What else can I do to self-soothe?“

The “weight-neutral” movement: a therapeutic approach to improving the health of individuals by focusing less on BMI and more on lifestyle behaviors. Studies suggest weight cycling is more strongly linked with specific adverse health outcomes than having an obese BMI. If your doctor’s appointments start and end with a phrase like: “You need to lose weight,” maybe it’s time to find a new doctor.

*The A1C test—also known as the hemoglobin A1C or HbA1c test—is a simple blood test that measures your average blood sugar levels over the past 3 months.

Plus-Size Fashion and Tavel Blogger, LGBTQ+ Influencer, Alysse Dalessandro Santiago guests on Divabetic’s October podcast with musical inspiration from Carly Simon. Hosted by Mr. Divabetic.

Looking for a fun way to socialize without putting your diabetes wellness at risk? Do you need a little help staying on track with your diabetes self-care?

In honor of National Diabetes Awareness Month, the happy healthcare host, Mr. Divabetic presents its Once In a Blue Moon program. This free, fun-filled, informative hour of diabetes outreach is intended to rejuvenate and reignite your attitude. The happy healthcare host, Mr. Divabetic, Maryann Nicolay MEd, NDTR, Wendy Satin Rapaport LCSW, PsyD, and Divabetic Image & Style Advisor Catherine Schuller share expert ways to expand food choices, add sparkle, and boost spirits.

So have some fun spending time with us during our Once in A Blue Moon program on Thursday, November 11, 2021, 7 – 8 PM EST on Zoom.

REGISTER NOW – FREE PROGRAM

09/05/202109/05/2021

t1international’s Insulin Crisis Digital Demonstration Campaign Needs You!

1 in 4 people with diabetes is forced to ration insulin — too often, fatally — because costs continue to skyrocket! Join Mr. Divabetic in supporting @t1international’s Insulin Crisis Digital Demonstration Campaign. Added bonus: @miss__diabetes will animate you!

@T1International aims to highlight the severity of the insulin crisis.

In 1923, the discoverers of insulin sold its patent for $1, hoping the low price would keep the essential treatment available to everyone who needed it.

Now, retail prices in the US are around the $300 range for all insulins from the three major brands that control the market reports the BBC.

Submit your photos to fellow diabetes advocate @miss_diabetes by September 10, 2021.

LEARN MORE

Be part of my animation for T1International and their Insulin Crisis Digital Demonstration!

Here’s how:

Step 1: Take a selfie of yourself holding a sign that states 1 in 2 Can’t Access INSULIN #insulin4all #insulin1in2 – these hashtags are important, so don’t forget to add them! (Your message just has to be visible.)

Step 2: Post a photo of yourself to your Instagram and Tag T1International and @missdiabetes

Step 3: Submit your photo to Miss Diabetes and let her do her magic!

This global demonstration is open to anyone who wants to send a message to Big Pharma and to people who don’t know about the insulin crisis that is affecting people with diabetes.

If you participate, you will be entered into a random drawing to win a Custom Portrait Print of Yourself (giclee printed) by Miss Diabetes! DEADLINE: 9/10/21

Please help us highlight the insulin crisis during the 100th year of the discovery of insulin and to #advocatedontcelebrate #insulin4all

07/04/202007/04/2020

Patti LaBelle Inspired The Phrase: ‘Divabetic’

July’s Divabetic Inspiration, Ms. Patti LaBelle performs tonight on A Capitol Fourth on PBS and NPR, July 4 at 8 PM. EST. TUNE IN

It seems only fitting on the 4th of July to reflect back to the time when Patti LaBelle’s electric persona sparked my desire to become a diabetes advocate.

Yes, it’s true the world’s most famous ‘Divabetic’, Patti LaBelle inspired me to coin the phrase ‘Divabetic’ in 2003. During a Luther Tribute concert at Madison Square Garden she stopped singing and admitted to the sold-out audience that she was living with type 2 diabetes.

Ms. Patti LaBelle said, “I have diabetes, it doesn’t have me.’ and I thought to myself as I looked up at her on stage, ‘she’s a DIVA, not a diabetic’.

Boom! Boom! Boom!

Even brighter than the moon, moon, moon

It’s always been inside of you, you, you

And now it’s time to let it through

Seconds later, I realized that the ‘V’ in ‘Divabetic’ was a subtle reference to my boss, Luther Vandross’s last name. These initial thoughts are what pushed me to step out of my comfort zone and pursue diabetes advocacy. Shortly thereafter, I started making ‘Divabetic’ t-shirts as a one-time diabetes fundraising effort. My t-shirts had ‘Divabetic written on the front and ‘Sugar’s The Bitch. Not Me.’ written on the back.

I personally gave Patti LaBelle one of my first Divabetic t-shirts and told her that she inspired me to coin the phrase ‘Divabetic’. We were both visiting Luther’s mother, Mrs. Mary Ida Vandross at her home in Philadelphia, PA. I told her how much I appreciated what she said up on stage and mentioned that I wished Luther could have been as open and forthright about his diabetes as she is.

Of course, I’ll never really know what would have happened if Luther had adopted Patti LaBelle’s attitude. Could he have avoided a major health crisis? All I know is that I wouldn’t have felt as helpless as I did when I found him on the floor of his home after he suffered a debilitating stroke.

Since the day I presented Patti LaBelle with a Divabetic t-shirt, she has happily proclaimed herself a ‘Divabetic’ on TV and radio and in magazine interviews. She has helped me to show women living with, at risk, affected by diabetes that they are NOT alone.

https://youtu.be/kxCcTfAkaE0

Let Ms. Patti LaBelle inspire you to create your very own entourage of healthcare professionals to live with diabetes like a diva!

According to the American Diabetes Association, your diabetes wellness healthcare team should include: your primary doctor, endocrinologists, registered dietitian (RD), certified diabetes educators (CDE), eye doctor, podiatrist, dentist, therapist, and loving, caring friends, family and co-workers.

You just gotta ignite the light

And let it shine

Just own the night

Like the Fourth of July

My journey may seem ‘glamorous’ but the truth is that diabetes devastated my life and my dream. It silenced Luther Vandross’ beautiful voice. I encourage you to make time and ‘keep your house a home’ by learning to prevent a diabetes health-related complication such as stroke from occurring.

We’re celebrating Divabetic’s 10th Year Podcast Anniversary with music from the world’s most famous “Divabetic”– Ms. Patti LaBelle. She has inspired us to adopt and promote a ‘NEW ATTITUDE’ about living with diabetes!

Thank you to our loyal listeners for sharing your stories, questions, concerns, and successes with us over the past decade. Our aim has been and continues to be to broaden the appeal of diabetes education with music, beauty/style, games, real-life stories, cozy mysteries radio dramas, and laughter.

10th Year Anniversary Podcast guests include: Patricia Addie-Gentle, RN, CDE, Lorraine Brooks, Dr. Andrea Chisholm OB-GYN, Luther McRae, Mama Rose Marie, Susan Weiner MS, RDN, CDE, CDN, Dr. Beverly S. Adler PhD, CDE, Best-Selling Author Tonya Kappes, Seveda Williams, Catherine Schuller, Terri Seidman and special guests.

One lucky listner in our random drawing will win a Dario Blood Glucose Meter starter kit. This all-in-one pocket-sized device can track blood sugar fluctuations and trends and identify hyper/hypoglycemic episodes right from your smartphone, providing readings within as little as 6 seconds. It’s scientifically proven, HIPPA compliant, and includes Dario Coaches to offer support and motivation to help manage your diabetes.

We’d like to acknowledge everyone who has taken measures to protect our Divabetic community members living with diabetes and their loved ones by wearing cloth face coverings and social distancing.