Max Szadek Founded Divabetic.Org After Luther Vandross Suffered A Stroke Related To Mismanaged Type 2 Diabetes

ince many of you might be watching the Luther: Never Too Much documentary on CNN, I wanted to take a moment to share a bit about my journey. After discovering Luther, after he suffered a stroke due to mismanaged type 2 diabetes, I felt driven to become a diabetes advocate.

I joined Luther’s mother, Mrs. Mary Ida Vandross, on the promotional tour for Luther’s album, Dance With My Father. Sadly, Luther suffered a stroke related to mismanaged type 2 diabetes before the album’s release.

It was a meaningful time as I shared updates about health with the media. After the tour wrapped up, I asked Mrs. Vandross if she’d be interested in participating in the first PSA for Divabetic, produced by my dear friend, Gay Ball O’Brien. Our shared loss made us a powerful team advocating for diabetes education and stroke prevention.

This path led me to found Divabetic.Org, a nonprofit dedicated to reaching out to those at risk, impacted by, and living with diabetes.

The phrase Divabetic is a combination of the word ‘diabetic’ with a ‘V’ for Vandross to celebrate all the divas that Luther loved.

Patti LaBelle, living well with type 2 diabetes, inspired me one night during a Luther Tribute concert in New York City. In the middle of her performance, she boldly declared, “I have diabetes. Diabetes doesn’t have me,” which really struck a chord with me. Her confidence and glamour made me think, “She’s not just a diabetic; she’s a diva!”

When I got home after the concert, I felt inspired to jot down the word “diabetic” in black ink and cleverly add a ‘v’ in red ink. At that moment, it hit me that the ‘v’ stands for Vandross!

A few months later, when I traveled to Philadelphia with Luther to visit his mother, Mrs. Mary Ida Vandross, guess who was there? Patti LaBelle!

I was thrilled to present her with the first Divabetic t-shirt and share how much she had motivated me. Over the years, she’s graciously called herself a ‘Divabetic,’ and it’s such an honor!

The mission of Divabetic is to transform lives by changing attitudes, boosting spirits, and encouraging hope and motivation for those living with, affected by, or at risk of diabetes.

I couldn’t turn my back on what happened; instead, I became determined to help Luther’s fans and others learn to keep their house a home and stay healthy.

I focus on preventing diabetes complications, promoting a team approach to self-management, and educating everyone about handling unexpected self-care crises.

Luther suffered a stroke in April 2003, and by November, I was busy selling Divabetic t-shirts with the slogan “Sugar’s The Bitch Not Me” to raise funds for diabetes organizations.

I also volunteered on the national diabetes TV show, d-life, and started offering free coaching classes with two inspiring women who live with type 1 diabetes.

Fast forward to 2006, and I was out there participating in health fairs across NYC, including the Apollo Theater. I hosted monthly diabetes education meetings with a certified educator and launched my first major program, Divabetic – Makeover Your Diabetes, with support from Novo Nordisk.

Over the next two years, my program gained recognition, becoming the highest-rated diabetes program for Novo Nordisk worldwide!

I continued to bring unique diabetes outreach to major cities, started a podcast, and created ‘man on the street’ videos to empower those living with diabetes.

I created the carbohydrate counting game, Carb Kitty, published the ebook, Sweet Romance: A Woman’s Guide to Love And Intimacy With Diabetes, and presented the art installation and outreach event, Plate Poetry, focused on emotional eating.


Divabetic’s Diabetes Plate Poetry “What’ s on Your Plate?” video describes the emotional experience of living with diabetes.  An important component of diabetes self-management, but often unaddressed, is the topic of emotional well being.

The Divabetic Club empowers those living with diabetes through media to manage their lives in healthier ways. People living with diabetes face numerous challenges in managing their disease on a day- to- day basis.  Divabetic wants to encourage these individuals to stay positive and healthy in their self-management.

Our mission to glamorize good health combines fitness, nutrition, style and positive energy.

Divabetic’s Luther Vandross Tribute podcasts aim to celebrate Luther’s musical legacay, share information on the emotions associated with managing diabetes and the underlying reasons attributed to those emotions, and encourage people to ‘keep their house a home’ by learning to prevent diabetes health-related complications from occurring.

I’ve had the pleasure of creating ten Divabetic mystery podcasts with the amazing Best-Selling Author Tonya Kappes!

It’s been such a rewarding experience to empower others through storytelling. Our goal is to encourage listeners to think like detectives when it comes to self-care issues. We help them search for clues regarding unexpected high and low blood sugar readings and report back to their healthcare providers.

After facing challenges, including being unwelcome at a prominent church for being gay, I found support in my volleyball league, Gotham Volleyball.

I launched the Coming Out Project to help others embrace their identities.

In 2017, after Alfa Anderson’s album release (featuring her When Luther Sings tribute song, I organized reunion concerts at Ashford & Simpson’s Sugar Bar in NYC to celebrate Luther’s musical family resulting in the creation of FANDROSS.

I also produced several Luther Tribute podcasts featuring Luther’s friends, peers, collaborators and health educators.

Working with Luther Vandross also inspired me musically. My first foray into lyric writing led to the Billboard Dance Chartting single, That Man Of Mine, with singer songwriter, Cindy Mizelle and backing vocals by Brenda White-King.

I co-wrote UK Soul Chart hit, Mama’s Kitchen Table and the holiday breakup ballad, Pink Champagne with musician, songwriter, producer Ivan Hampden Jr. and singer, songwriter Paulette McWilliams.

I teamed up with the dynamatic sister duo, Crystal Penny, and Ivan Hampden Jr., to pen, Standards, my tribule to the legendary female vocalists whose music compose the soundtrack of my life.

So, thank you all for your concern—I’m doing well, staying busy, and ready to present more diabetes outreach with dazzle this year

Dating With Diabetes

Living with diabetes can be a challenging experience, especially when it comes to your relationships. That’s why it’s important to talk to your loved ones about your diabetes diagnosis and how it affects your life. It can help you surround yourself with a more supportive and encouraging environment.

I often compare discussing your diabetes diagnosis to my experience of coming out as gay to friends, family, and potential partners. You can’t do either without accepting yourself and your diagnosis. But when and how you choose to tell friends, co-workers, or someone you are romantically involved with that you have diabetes depends on the person. There’s no golden rule.

I was never comfortable blurting it out at the beginning of a friendship or relationship, but I can understand why others choose to. Conversely, I understand that the longer you wait to tell someone, the harder it is to admit it. After walking the earth as a gay man for over three decades, I can tell you that keeping secrets is not an ideal way to create long-lasting, trusting relationships. At some point in your life, you realize it will never get easier, and it’s better to say it and let the chips fall however and wherever they will.

In our first-ever Diabetes & Relationships survey in partnership with Diabetes Sisters, 50% of the respondents said they tell their friends immediately about their diagnosis.

Co-authors of Divabetic’s ebook, “Sweet Romance: A Woman’s Guide To Love & Intimacy With Diabetes,” Dr. Janis Roszler PhD, LMFT, CDCES, LD/N, FAND, and Donna Rice MBA, BSN, RN, CDCES, FADCES offer advice on discussing your diabetes diagnosis as well as issues related to intimacy, fertility, and menopause with the people you care about the most. 

Sadly, it seems that most women prefer telling their friends rather than their lovers about their diagnosis. I assume fear of rejection is the main cause of the hesitation to disclose a diagnosis to a romantic partner. But the embarrassment of living with sexual dysfunction issues related to diabetes for women, including low libido and personal dryness, could also make someone tight-lipped about disclosing a diagnosis.

Romantic relationships play an important role in our everyday lives. But when diabetes enters the picture, it can complicate even the most loving and open relationships. Many people don’t know that diabetes can impact physical and emotional intimacy. Intimacy-related issues can be especially difficult to discuss with a partner or a healthcare provider. But don’t let diabetes hinder the romance. The Sweet Romance series gives you practical information and expert advice to tackle this sensitive subject. These comprehensive, interactive guides cover everything you need to know to enjoy a fulfilling sexual and emotional life despite the challenges of diabetes.

Sweet Romance: A Woman’s Guide to Love and Intimacy with Diabetes, book one in the series, is your key to a happy, healthy, intimate life with diabetes.

Inside, you’ll find:

  • The common physical and emotional sexual complications of diabetes and treatment options for men and women
  • An overview of diabetes nutrition, physical activity, weight loss, and diabetes medications
  • Information on how aging impacts diabetes management and intimacy
  • Guidance on how to talk to your healthcare collaborators about intimacy-related issues
  • Ideas and techniques for building sexual intimacy and communicating effectively with your partner
  • Tips to help you avoid dangerous or money-wasting fraudulent sexual treatments

Authors Janis Roszler and Donna Rice use humor, helpful examples, and insightful questions to present key topics about sexual health in an engaging, approachable way. This series is perfect for anyone (regardless of gender, sexual orientation, age, or health status) looking to rekindle intimacy with their partner or be proactive about their sexual and emotional well-being.

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31 Days of Divabetic Podcasts, Day Twenty Nine

Divabetic (Divabetic.org) presents a month-long showcase celebrating 10 years of diabetes podcasting. Each of the featured podcasts spotlights our favorite guests, topics, poems, games and/or musical inspiration. Enjoy!

On Day 29, we’re spotlighting Divabetic’s Diabetes Late Nite Inspired by Ricky Martin podcast from June 2019.

We’re talking about ‘Diabetes & Pride’ with musical inspiration from Ricky Martin.

Since Ricky Martin came out in 2010, he’s been a prominent voice for LGBT rights both in the U.S. and in his native Puerto Rico. Ricky Martin said, “I just wanna be free,” upon receiving GLAAD’s Vito Russo Award, which honors gay entertainers who promote equal rights. Martin opened up his life to Vanity Fair in its April 2012 issue and spoke candidly about his twins, Matteo and Valentino, and his longtime partner, Carlos Gonzalez.

This year marks the 50th anniversary of Stonewall Uprising (June 29, 1969). It is widely considered to be the single most important event leading to the gay liberation movement.

Diabetes can have a serious psychological and emotional impact, and can affect self-management as well as the individual’s quality of life.  It has been reported that low levels of self-esteem have been associated with diabetes and diabetes management. Evidence shows that self-esteem can be a key factor influencing health care behaviors.

Low self-esteem is the prime driver of self-harm among gay and lesbian students reports Psychology Today.

For the first time, a new study, “Psychological Correlates of Self-Harm within Gay, Lesbian and Bisexual UK University Students,” reports that low self-esteem may have a bigger influence on self-injury behaviors than depression or anxiety.

How does being gay or bisexual affect your diabetes self-care? And what’s it like to be gay, lesbian, bisexual and/or transgender living with diabetes?

As an openly gay man, Mr. Divabetic is honored to shine the spotlight on members from the LGBTQ+ community living with diabetes. Guests include Stephen Bernstein, Greg Rubin, Maria Salazar, Maya James and the Charlie’s Angels of Outreach.

 

 

Our monthly podcasts are dedicated to Music Lovers living with, at risk and/or affected by diabetes. We aim to be the epicenter of the circle of care, a link between patients and their health care providers, a translator of clinical speak and a bridge between denial and acceptance, fear and confidence

Divabetic was inspired by the late music legend, Luther Vandross and created in 2005 by Max ‘Mr. Divabetic’ Szadek, who, as Vandross’ assistant of 14 years, witnessed his boss, mentor, and friend struggle in silence and solitude with the diabetes and its related complications. Since its inception, Divabetic has presented outreach programs in 15 major U.S. cities, reaching hundreds of thousands of women, their families and health care professionals.

Experience more of our GLAM MORE, FEAR LESS philosophy at divabetic.org